08:30: I call my research nurse Deborah and ask her questions about the study. The main reason being is that MD Anderson has been saying they have been getting preapprovals and doing everything right, but the insurance company just isn’t pay at in network levels, like the insurance company said they would and the insurance
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00:15: Dee and I head back to the hotel room from The Park. 00:25: Back at the hotel room. 00:35: ZzZzZzZzZ 09:30: Up I am. 10:10: Out the hotel room we check. Then over the skybridge to the main building, then up Elevator B to the 6th floor. 10:19: I check in at the 6th
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Another trip to Houston, however the PET/CT scans are over, just CT scans now to monitor the size of the locations of where the active tumors were. If they grow or change size then a PET scan will be ordered to. 06:00: Up I am. 06:30: To the airport. 06:45: At the airport. 06:55: Through
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Another trip to Houston for another PET/CT Scan to check on my status. 07:00: Out the house. 07:15: At the airport. 08:05: Boarding begins. 08:15: In the plane, not on the plane, I am inside the plane… 08:38: Take off. 09:26: Touch down. 10:22: On the metro express 102 bus to downtown. 11:21: At the
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Everything was good on the scan, and still in remission. There is just one spot to watch in the back vertebra. But could be a false positive from maybe an injury. I will return in 3 month to MD Anderson for a follow up PET/CT to confirm a false positive/ injury or if it’s still
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Another scan day. At MD Anderson today for a follow up PET/CT scan. Hoping for the best, but keeping my options open just in case, as it helps make the news not as devastating if bad, but that much sweeter if good. I feel fine, so that’s what counts. 06:00: Up 07:00: Out the house.
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At the Shrine on airline, aka Zephyrs field before the Baby Cakes game. My dad and I were playing catch on the field and Dwier Brown walks up and asks to join us! So we both got to throw a few with John Kinsella from the movie Field of Dreams. https://twitter.com/cakesbaseball/status/875858519970467840
Time for my 3 month check up with Dr. Rodriguez for the study follow up. My last infusion was December 27, 2016. 00:00: Finish packing my bag. 01:45: Done organizing and scanning my receipts and making a summary of the receipts for reimbursement of travel, hotel, and meal expenses for the study for my two
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05:20: Up I am. 05:30: Ready am I. 05:45: Ready is the wife finally… 05:50: Out the door we head. 06:00: At the airport we are. 06:15: Through security we are. 06:25: At the gate we sit. Dee catches some Zzzzzzzs. 08:20: Boarding begins. 08:25: I go up to the counter and ask the clerk
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00:20: All done at the park, back to the hotel room my mom and I head. 00:30: Back at the hotel room we are. I do a few more things on my small laptop. 01:30: To sleep I go. 09:00: Up I am. Quick shower and get dressed i get. 09:40: Out the hotel room
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00:00: At the park we still are. 00:44: Done at the park, back to the hotel room we head. 01:00: Back in the hotel room we are. I get back on my laptop and do a few things. 03:00: To sleep I get. 07:30: Up I am. Ready I get. 08:40: Out the room we
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12/13/2016: 00:00: Still working at a client location with my Dad running network cables, changing the configuration of their network, and installing a wireless access point. 00:15: Wrapping up the job. 00:30: Home my Dad and I are. 00:45: A salad I eat. 01:30: I print up my mom and I’s boarding passes and pay
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11/30/2016: 00:00: Still in the park. 00:22: All done at the park. We make our way back to the hotel room. 00:30: Back in the hotel room. 01:00: To sleep I go. 07:30: Up I am. Shower and dressed I get. 08:30: Leftover Cold Pizza for breakfast, great stuff! 09:15: I check out of the
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02:00: I finish ordering parts for a client for a project that I am working on. To sleep I go. 05:30: Up I am, dressed I get. 05:57: Out we head. 06:19: My dad drops off my mom and I at the airport. My wife has school & work, so she doesn’t get to come.
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0:00: In the hotel room, I get on my laptop, eat some of the peanut butter bar, order items and wrap up what I need to jump on an restoration for the weekend. 02:00: All done. Time for me to go to sleep… 06:00: Up I am. 06:30: Shower I get. 07:00: Finish ordering things
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05:30: Up I am. 05:45: I check a few things on client servers and services. 06:00: Dressed and ready I get. 06:25: Uncle Victor picks me, my mom and dad up. Dee has school and work so she is staying home. 06:40: At the airport we are. 09:06: Takeoff we do 10:08: Touchown. 11:08: The
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11/2/2016: 00:20: I finish checking up with Dee, and then head back upstairs. I browse the TV channels. 01:30: ZzZzZzZzZzZz… 06:30: Up I am, and shower I get. 07:30: I put on my numbing cream. 07:50: Out of room 432 we head. I head down to the 1st floor 08:00: I check out of the
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11/01/2016: Another trip to Houston, possibly the one of the last few I have left considering my study is about to run out. 05:30: Up I am. 06:13: Out the door we head. 06:30: At the airport, my dad drops me off. 06:45: Through security. I get my normal zero vitamin waters, lemonade as usual,
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06:30: Up I am. 06:45: Contrast sucks, bathroom one must go following oral contrast that is disgusting and a heavy drink for the CT portion of the scan yesterday. Shower I get. 07:30: I put my cream on my port area for my port access later. Brush my teeth then pack everything up. 07:45: I
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05:15: Up I am. Normal routine, get dressed, check my bag to make sure everything is packed and ready to go. 06:00: Uncle Victor picks up my mom, dad, and out we head. My wife has midterms this week, so therefore she cannot join us on the trip and staying home to take care of
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10/05/2016: 00:00: I am in the business computer lab, and I try to print my tickets. I log into Spirit’s website, but then the computer restarts for the nightly maintenance they do on the computer. I an unable to print my tickets so I will just have to do it in the morning. 00:15: Back
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05:10: Up I am and prepped I get. 05:30: All packed up and ready to go. My youngest sister, Sarah, is taking the trip with me this time. My wife has school and work and unable to make the trip with me. 05:50: To the airport we head. 06:10: At the airport we arrive, and
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01:30: All done with my work for tonight. 06:45: Up I am. Shower anf ready I get. 08:00: Out of the room we head. 08:05: I check out. Then back up to the second floor, across the skyway, and up to the sixth floor. 08:15: I check in on the iPad at the myeloma and
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05:30: Up I am. 05:51: Out the door we head. My dad is dropping my mom and I off at the airport on his way to work. My wife has work and school, so she probably won’t be on any additional trips until the semester is over. 06:03: At the airport we are. 06:15: Through
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06:00: Up I am. 06:30: Shower I get. 07:00: I apply my numbing cream to my port area and put my saran wrap over the area then put my shirt over that. Saran wrap is great for keeping my shirt clean. 07:15: I check to see if I can get my airline boarding passes printed
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