22:30: Leave the house, heading for the Union Passenger Terminal aka New Orleans Train Station. Pick up some drinks for the trip at the convenience store. 23:00: Arrive at the train station. 23:30: All reserved seating passengers get in line to load the bus, they check our confirmation number then lead us to the bus.
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06:50: I wake up and get up and head to the lab in the main building. I walk from the rotary house, across the sky bridge, down to the second floor. 07:15: I sign in. 07:35: They call me to the back. 07:45: All done with the bloodwork. I walk back to the hotel room.
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1:45: We pull out of Danny and Clydes @ Clearview and W Napoleon and onto I-10. 6:50: We pull into Parking Garage 10 @ MD Anderson. 7:10: Check in with Laboratory. 7:25: I am called into the back and have 4 tubes of blood drawn. 7:30: All done with lab. 7:40: At MD Anderson Cafe.
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01:20: Pull out of Danny and Clydes at Clearview & I-10. 06:15: Arrive @ MD Anderson. 06:25: Check in at the lab to get my blood test done. 06:45: Called to the back for blood draw. 07:00: @ Anderson Cafe for breakfast. 07:45: Check in at the Lymphoma and Myeloma center for my 10:45 appointment.
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08/26/2015: 3rd Treatment @ MD Anderson 1:15: On the road to Houston, TX. I am driving. 6:30: We arrive at MD Anderson. All parked in Parking Garage 10. 6:45: I sign in for lab work. 7:00: All done with lab work, heading to the Lymphoma Center. 7:10: At the Lymphoma Center. I setup my laptop
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08/16/2015: I get a good 8 hours rest. Then get up, eat, still sluggish. then 3 hours later, I am taking another 3 hour nap. So yes the fatigue is starting to set in. Other than that, everything else is going well.
08/15/2015: I can feel the fatigue starting to set in. I sleep later than usual, and there is some resistance and not the just jump out of bed and ready to go feeling. Other than that a normal Saturday. Setting up Maps for Gaming with the Clan on Saturday Nights doing some Call of Duty
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1:15: We hit the road, I am driving. My wife, dad, and mom are along with me for the trip. 6:30: We are in the parking garage. 5 hour 15 minute drive. 6:40: I check in at Lab for then to pull my bloodwork. 7:00: All done. We go to the Anderson Cafe for breakfast.
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07/30/2015: 12:00: Pain! I do not have any pain in my back it is strictly my abdomen. I just took an oxycodone. 1:00: The oxycodone is not helping at all. It is a gaseous feeling, but nothing is helping. 3:00: Still in terrible pain. 5:00: My abdomen is still hurting me. I take some lactose.
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12:00: On the road again back to Houston, TX for MD Anderson. First stop will be though, Blue Bayou exit to pick up my sister! 12:30: Leaving the house again. Forgot my numbing cream for my port access, so turned around and picked that up. 01:30: We pick up ny sister from her house near
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01:45: Leaving the house, driving to Houston, MD Anderson. 02:15: On the road after picking up Uncle Victor for the drive back since I won’t be able to drive back after anesthesia. 07:15: At MDAnderson. Nice 5 hour drive from New Orleans, no construction slowdowns or traffic headaches. Quick bathroom stop on the way in.
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07/17/2015: Returning Home 00:00: My dad is getting tired of driving, so we jump off the Interstate a little after Lake Charles, and I take over driving. 02:30: We pull into the driveway. Trip over. We unpack the car. 03:00: Time to go to bed… ZzZzZzZzZ 10:00: I’m up, slow moving, but up, still a
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07/16/2015: MD Anderson: Testing 06:45: I am up which is early for me. 07:00: I take a trio down to The Oak restaurant to check out their breakfast buffet. Not bad, we will have to try it in a little bit. 07:15: Shower time for me. 07:45: Breakfast time, good stuff, bacon, Texas shaped waffles,
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07/15/2015: Next Stop MD Anderson 0:10: We pull out of the Driveway heading to Houston, TX. My Mom, My Dad, and I. My Wife had to stay home as she has work Friday morning and a double on Saturday, and we do not know what day we are returning. They said 5-7 days, but they
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07/11/2015: Garth Brooks My wife is a big Country Music Fan and an even bigger Garth Brooks fan. So I took her to the concert with Garth Brooks and Trisha Yearwood. It was a great concert: I listen to all walks of music so I knew all but three songs the entire night. Great Concert.
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07/10/2015: I get an email from MD Anderson telling me to log into my patient account on the MD Anderson website and when I log on, I see the additional test ordered. A CT Scan, a bone marrow biopsy, and a bone density scan.
07/09/2015: 16:06: Lana at MD Anderson called me and left me a voicemail message to call her back so that she could get my initial appointment scheduled. 16:22: I call Lana back. She asks me if I prefer July 15, 2015, or July 20, 2015. I told Lana, the earlier the better, she said July
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07/02/2015: 09:00: I arrive to the Tulane Cancer Center. I check in, and sit and wait. 09:30: I am brought to the back for bloodwork. 10:45: It’s my turn to be seen by the doctor and she walks into the room. My mother and my sister are both there, my sister was not a match
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07/01/2015: PET/CT Scan #11 Today’s PET/CT scan is scheduled for 1:00 PM, so I don’t need to be to the hospital till 12:30 PM. 9:00: Up and working on some ongoing client issues pertaining to emails. 12:10: Head on out to Tulane Hospital. 12:30: Get there and check in, sit down for a minute and
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06/17/2015: Another day running around taking care of clients. While at one client I get a call from the Transplant Coordinator. Unfortunately I was misinformed and the possible match that is in the US is a 9/10 match and NOT a 10/10 match. Still good, but not the perfect match… The story of my life
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06/13/2015: 10:00: Another Saturday morning waking up to a client’s phone call. I remote in and help the client with the issues he is having with his emails. 11:00: Out into the backyard I venture where my Dad has completely cleaned out the pond. I can’t help too much with this because of the diseases/bacteria
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06/12/2015: 08:45:00 On the way to Tulane for Chemo… I just don’t get it. People and their driving and their road rage. Today for instance, I had a car who decided they didn’t want to wait in line for the left two turning lanes at the red light, so they skip the line and then
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05/22/2015: Another lovely day. Time for Cycle 3 of Chemo 3 Round 2. 8:50: Check-In 9:00: Sign Insurance Paperwork. 9:20: Lead to Infusion Center. Temp 97.8, Weight 250 (I was 259 on Monday hmm…) 9:30: Sitting in the infusion chair waiting to be accessed. 9:55: Accessed, and blood return. 10:05: Premeds – Tylenol given. 10:10:
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8:00: I am up. I put on some Lidocane cream on the port and get ready. 8:30: Heading on over to Tulane. 8:49: I check in. 9:27: I sign the paperwork. 9:45: I am called to the back. 10:00: All vitals done. 10:15: They attempt to access my port. Problem is the needle is not
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Craig: 7:45: Up…Wake up Wife… 8:04: Wife driving….Off to the Hospital for infusion. 8:30: At the hospital. 8:50: Led back to infusion. 9:20: Port Accessed. 9:25: Blood Taken for testing. 10:35: I am just waiting for them to figure out what to do as my liver enzymes are high. 10:50: They need to redo all
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