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Stem Cell Transplant: Day: -4

06/06/2013:

12:15: Another blood test. another syringe of throw away form my picc line and then a syringe for the test, then they hooke me back up to the line.

8:15: Brad is my nurse today.  I get my breakfast, eggs, bacon, muffin, not bad.  I eat my breakfast and still a little tired and mellowed out so I doze back off.

9:45: Dr. Safah and the fellow come in.  They say they are going to start watching my blood glucose numbers because they are starting to rise on the nightly readings.  This is normal with anyone going through this type of procedure as the combination of the steroids and the chemo make the body’s ability to maintain its blood glucose levels to a normal level almost impossible.

10:00: I start to doze back off after the doctor leaves.  A very common side affect of high blood glucose is being tired.  It is hitting me good.

12:00: The nurse takes me up and tells me he is about to take my blood glucose level.  He takes it and find out it is about 388.  Pretty high and would explain why I am so tired.  He tells me he is going to get some long lasting insulin.

12:10: The nurse gives me 10 units of the long lasting insulin, and a few units of short term insulin to go with my meal.  He then serves me my meal.  It is fish, yellow rice, a dinner roll, and some cake.

12:45: I finish up eating, and just lay in bed.  The sugars are starting to hit me again, I can feel it.  I start dozing back off.

1:00: My wife shows up to check on me.  No one has been able to contact me all day on the phone, as I have been sleeping most if not all the day.

2:00:  I am hit up with my 1/1 dose of Etoposide.  Just one quick dose and today’s punishment is over, no real big side effects here either.

4:00: The nurse wakes me up for some further vital signs and blood glucose check.  The glucose is about 315, and my vitals show I am still alive.

4:15: The nurse comes back with some more short term insulin before I get my supper.

4:30: I get supper.  It is BBQ chicken, yellow rice, greens, and jello.

5:15: I am done eating.  I brush my teeth and get everything ready for the evening.

5:45: I am laying back in bed.  I start dozing back off pretty quickly.

6:15: My parents show up, I know they are here, but too tired to really care at this point.  LOL  I am just out of it.

8:30: My wife and parents head on out.  I am just going to sleep the night away!

9:00: I take some more blood glucose numbers when the nurse wakes me up, and then I get some more insulin, then right back off to sleep.

11:59: Still sleeping, a great day of rest right here…..

 

Next Day: http://craig.handsfreehelp.com/stem-cell-transplant-day-3

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Stem Cell Transplant: Day: -5

06/05/2013:

12:15: The nurse comes in for my nightly bloodwork.  She hooks up to my picc line and pulls out a throw away syringe of blood, and then she pulls out a syringe to fill up to vials of blood for testing.

1:00: My wife is getting tired and decides it is time for her to head home.  We are not allowed to have any visitors stay the night unless we are confused and unaware of our surroundings.

2:00: I turn in for the night.  I take one last urinal break, and then I am laying in bed under the hospital covers.  I have my A/C set on 55, but the coldest it gets in my room at night is 68.0

4:00: I am awaken back up for my vital signs to be taken.  I am also told to hop out of bed and jump on the scale, 255.0.

4:05: I am back in bed dozing back off.

6:00: My last dose 16/16 of Busuflax is administered to me 🙂  All done this chemo!

7:15: I am awaken by the fellow who is coming in to check my breathing, any aches, pains, or discomfort to report back to the doctor before she makes her round with the doctor in a few hours.  I ask her about the hiccuping, she says she will look into the thorazine and make sure it is being administered.  I am feeling a little tired, and doze back off.

8:15: Brad is my nurse today.  I get my breakfast, eggs, bacon, muffin, not bad.  I eat my breakfast and still a little tired and mellowed out so I doze back off.

9:45: Dr. Safah and the fellow come in.  They say they are going to start watching my blood glucose numbers because they are starting to rise on the nightly readings.  This is normal with anyone going through this type of procedure as the combination of the steroids and the chemo make the body’s ability to maintain its blood glucose levels to a normal level almost impossible.

10:00: I start to doze back off after the doctor leaves.  A very common side affect of high blood glucose is being tired.  It is hitting me good.

12:00: The nurse takes me up and tells me he is about to take my blood glucose level.  He takes it and find out it is about 388.  Pretty high and would explain why I am so tired.  He tells me he is going to get some long lasting insulin.

12:10: The nurse gives me 10 units of the long lasting insulin, and a few units of short term insulin to go with my meal.  He then serves me my meal.  It is fish, yellow rice, a dinner roll, and some cake.

12:45: I finish up eating, and just lay in bed.  The sugars are starting to hit me again, I can feel it.  I start dozing back off.

1:00: My wife shows up to check on me.  No one has been able to contact me all day on the phone, as I have been sleeping most if not all the day.

4:00: The nurse wakes me up for some further vital signs and blood glucose check.  The glucose is about 315, and my vitals show I am still alive.

4:15: The nurse comes back with some more short term insulin before I get my supper.

4:30: I get supper.  It is BBQ chicken, yellow rice, greens, and jello.

5:15: I am done eating.  I brush my teeth and get everything ready for the evening.

5:45: I am laying back in bed.  I start dozing back off pretty quickly.

6:15: My parents show up, I know they are here, but too tired to really care at this point.  LOL  I am just out of it.

8:30: My wife and parents head on out.  I am just going to sleep the night away!

9:00: I take some more blood glucose numbers when the nurse wakes me up, and then I get some more insulin, then right back off to sleep.

11:59: Still sleeping, a great day of rest right here…..

 

Next Day: http://craig.handsfreehelp.com/stem-cell-transplant-day-4

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Stem Cell Transplant: Day: -6

06/04/2013:

12:00: My 7/16 dose of Busulfex is hung from the pole and the line hooked up to my picc line and the pump turned on.

2:00: The nurse comes back in and removes the line hooked up to the picc line, my chemo is done.  I get comfy and start dozing off.

4:00: The nurse wakes me up, time for vitals.  He then makes me jump out of bed and onto the scale.  Then back in bed I go.

6:00: My mom calls in on her way to work, I talk to her briefly then up for a quick bathroom break.

6:10: My dad calls on his way to work, I am then laying back in bed and doze back off.

8:15: I am awakened by the nurse looking to take my vitals.  He takes my vitals and then grabs my food tray from outer room of my hotel room.  He asks me if I would like it warmed up, I tell him that I would, he brings the tray to the pantry and warms up my food and brings it back.  I split up my desk and let him put the food on the side closer to me.  I start eating.  Eggs, bacon, muffin, hash browns, and a fruit cup.

8:30: The nurse gives me my medicines while I am eating.

8:45; I finish eating.

9:00: I brush my teeth, and sit in the chair next to my window to do my workout.  I start with my upper body, and then I work out my lower body.

IMAG07269:30: I am done m work out.  I am moving around, throwing away the trash and just general small tasks around the hospital room.  I also update the board in my room with my weight, intake, days left, dose count, etc.

9:45: Dr. Safah and the fellow come in.  She asks how I am doing, and I am doing fine.  I tell her about my hiccups and she suggests putting me on Thorazine to clear up the hiccups.

9:55: Dr. Safah and the fellow leave.

10:00: I return to sitting up in bed and working on my two laptops.  I have a movie streaming on the left computer on net flix while continuing work on my right laptop.

11:30: My Zofran is hooked up to my saline drip line.

12:00 Lunch is here, oh joy!

12:10: My Busulfex is hooked up and the chemo line hooked up to my picc line.

12:30: My Decadron is hooked up and started dripping where my Zofran that has finished up was.

2:15: The Busulfex is done.  I hit the nurse button for the nurse to stop the beeping and come take the Busulfex off the pole and unhook it from me.

3:00: The nurse gets around to me and takes down my chemo and flushes the picc line.

3:30: I am on the phone with my wife who is at my office.  I step her through completely reinstalling Windows 7 on a computer.  The computer had a horrible virus, and there was not to much more I could do remotely that I haven’t already tried in my office, so the only other option was a complete reformat.  Can’t really reinstall windows remotely, now can you…

4:30: Dinner is served.  BBQ Chicken, Yellow Rice, Green Beans, and a Bun with Blackberry Cake.

IMAG07255:15: I am done with dinner.  I get up, throw away my tray, brush my teeth, and get back in bed and go back to work here and there on the computers remotely.

5:30: We finish up with the reinstall, I have my wife load up the remote software so that I can remote into the computer and we should be good to go.

6:00: My sister, Sarah, and my Mom and Dad arrive.  They brought me plenty of water for plenty of drinking and flushing my system.  I found having a big quarter of a cup to drink fluids out of along with a nice invention called Crystal Light, sure does help the fluids go down  alot easier and keep me hydrated.

7:00: My sister, mom, and dad head on out.  Just a quick visit today.  My wife is still hanging around, so I still have company.

7:30: I am on my computer, taking care of a few things for clients and my wife is just sitting in the room with me watching TV.

11:59: Another day has come to an end.  Tomorrow is just a minute away…

 

Next Day: http://craig.handsfreehelp.com/stem-cell-transplant-day-5

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Stem Cell Transplant: Day: -7

06/03/2013: Happy Birthday Dad!

12:05: The nurse comes in and collects my blood in vials to send to the lab or daily testing.

12:15: The nurse comes back in and starts the 3rd dose of Busulfex.

2:15: The nurse comes back in and unhooks the line that was feeding me my Busulfex.

2:30: I turn over and get comfortable, and then to sleep I go.

7:50: I am awaken by the new fellow who will be following Dr. Safah this month.  She is just coming in to listen to me breath, check my body, and my legs for swelling etc, the daily morning routine.  She will report back to Safah and then they will make their rounds together later.

8:15: I get breakfast.  Nothing too great.  A while big serving of cold, hard, gooey oatmeal?  No thanks.  I just eat the little bit of eggs ad bacon and muffin that is on my plate, and I am just going to throw away all the oatmeal, that will just make me sick.

8:45: I am done my breakfast.  I get up, throw away my tray, brush my teeth, rinse my mouth out.

9:00: A physical therapist comes in with a stretch band for me to do some basic upper body arm strengthening and stretching.  They do not want me to get weak being stuck in this hospital room.

9:30: I am back in my bed, on my computer, working on a few things here and there, looking up a few things as well.

10:00:  Dr. Safah and the fellow make their rounds.  I am doing good, walking around with no issues, no real nausea, just one day at a time.  She is happy with how I am doing.

11:00:  I am still on the computer, still in bed.  Just have the TV on in the background and on m computer.

11:45:  I get my second load up of Decadron and my third of Zofran before starting my next doze of chemo.

12:00: I get my lunch.  Red Beans and rice, yummy!  Actually this is one of their better meails.

12:45: My chemo is hooked up for my 5th dose of Busuflax.

2:45:  This dose of chemo is done.

3:00: I tell the nurse that I am going to get a quick wipe wipe down real quick  She tells me that she can get me some towels and special soap and two buckets.  I am to dip the hand towels in the bucket with the soap she gives me.  Then I am to wash myself, and put the towel in the laundry bag.  Do not double dip any of the hand towels.  Grab a new towel to rinse off with and a new towel for each new soap application.  Shen then unhooks me from the chemo and from the saline.  She says first before I get my wipe down that another nurse will be in soon for a breathing treatment for a prophylactic  measure to make sure I don’t get any respiratory problems.

3:10: The respiratory nurse comes in and tells me that the solution I am about to breath in is going to taste nasty.  This treatment will take place once every 30 days when I come back in to the infusion center for blood work and infusions and such after I am released from the hospital.

3:15: We start the breathing treatment.

3:30: We finish up the breathing treatment.

3:40: I start up my scrub down.  Shirt off, and scrubbing down my upper body.  I hear a knock on the door, it is another physical therapist.  Her focus is on my legs.  She wants to make sure that I walked in here, and she wants to make sure that I can walk out of here and don’t become too week sitting in a room for a month straight going through all this treatment.  We go through the work outs on the paper real quick.  She tells me that she will be back in a week to check up on me.

3:50: Back to my scrubbing and rinsing and scrubbing and rinsing.

4:10: I am done washing up and cleaning up.  All the dirty towels in the bag.  My dirty clothes in another bag for someone to take home for me.

4:15:  I am dressed, I am sitting by my laptops on an office chair because I am waiting for the nurse to come out and make my bed with fresh linens.  I get a few emails from one client, and find out it is the web browser and email program he is using, that is why his print outs are not coming out correct.  He thought it was related to the driver issues I had resolved lasted week, but this was totally unrelated.  I emailed him how to resolve it, and if he couldn’t figure it out, for him to get back to me and I will setup a different way for him to check his email and print up items out of the email.

4:25: The nurse comes back in and makes up my bed for me.

4:45: Dinner is served.

5:00: My wife arrives.

5:15: I finish my dinner.

6:30: My nurse comes back in and starts up my next dose of Busulfex.

7:00 My parents arrive.  It’s my Dad’s birthday, and I told my mom to take my dad out to eat, and that I was fine here at the hospital, and I will just see them when they are done enjoying their evening.

7:00: Shift change for the nurses.

8:30: My parents arrive.  They tell me about their evening.

9:30: My parents go off, they have a few more errands to run today.  They are probably going to start coming one at a time every other day between them so that they can finalize some cleaning and straightening up around the house before I head back home.  Its gotta be dusty free, pet free, plant free, the whole inside has to be as clean as can be to minimize my chance of infection when I go home.

11:00: My wife leaves.

11:30:  Time to load up on some more Zofran as my next chemo dose is coming up.

11:59: Another day gone, tomorrow is more chemo and another day.

 

Next Day: http://craig.handsfreehelp.com/stem-cell-transplant-day-6

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Stem Cell Transplant: Day: -8 – Chemo Starts

06/02/2013:

12:05: The nurse pulls out about a half inch to an inch of picline.

12:15: She redresses the picline access area.  She tries to draw blood but she can’t and she is not happy about it.

IMAG072912:20: She decides to move my hand down and tries to draw blood again and this time again, oh great, another thing positional, the pic line…

12:30: The XRay tech comes in again, throws a plate behind my back, lines up the machine and the plate, and snaps the picture.  He the takes his XRay machine and plate back out.

1:30: The nurse comes back in and it sounds like it is in the right spot hopefully.  I should be getting my premeds around 5:30 AM and my chemo around 6:30AM.

2:00: My parents and my wife leave.  They just wanted to make sure everything went all right.

3:00: I finally decide to doze off and go to sleep.

4:30: I am waken up by the nurse checking my vitals.  The nurse also tells me that we are not going to get started this morning because the picc line is not in the right spot, still.  They have called the picc line contractors who will come and attempt to fix it, again.  I doze back off.

7:15: My dad arrives, we turn on some Bill Cosby.

7:45: Breakfast.

8:30: The picc line guy arrives and is ready to go to work.  I lay back, he lifts the bed, tears off the dressing, and pretty much pulls the picc almost all the way out, just leaving the tip in.  He then threads the feeder wire into the whole in my arm, and feeds the picc line back through my arm down to my SVC.  He said he is only taking one shot at this because this is the 4th time trying to feed this picc line.  If this doesn’t fix it then special XRay or someone else is going to have to get this line started or come up with another solution.

8:45: Xray gets to my room and they are setting me up for a single shot in the bed.  The nurse then comes in and tells them that I have orders for a dual view of my chest again to check the position of the picc line.  The XRay checks the computer system and confirms this.  He then rolls his unit back downstairs to the XRay area.

8:55: The picc nurse takes me downstairs in a wheel chair as he wants to see the XRay for himself since there has been so many attempts.

9:10: I am position for the first XRay with my back facing the XRay machine and my chest facing the XRay Plate.

9:15: I am turned to my side with my right side facing the XRay machine, and my left side facing the XRay Plate.

9:20: The XRay tech takes the second plate to the back and starts processing it.

9:35: The Xray tech wheels me out into the hallway while the picc nurse looks at the XRays.

IMAG07199:45: THe picc nurse says that the position while not the best position is in a good position for me to get the chemo.  The tumors in my chest have pushed the SVC closed so much that they cannot easily feed the tip of the picc line where they want it in my SVC. The picc line nurse things that they should be able to use it as is, and if they can’t use it to go to special Xray or someone else because they have no other solutions because they are going into it blind and can’t see what the tumor is doing to the SVC and don’t have too much control over the direction of the picc line when feeding it.

10:00: The nurse goes ahead and orders my chemo and premeds since we are going to start at noon, 6 hours off our original start time, so everything is going to be pushed off 6 hours.  The nurse hooks up a saline drip to get fluids going through the picc line.

11:30: They hook up the Zofran for anti nausea to the picc line.

12:00: The nurse hooks up the Decadron for my steroids after the Zofran.

12:15: I get my lunch and eat.

1:00: The nurse comes back in and hooks up my first dose of chemo, Busulfex.  I will receive 16 doses of this over the next 4 days, that 4 doses a day, once every 6 hours.  The Zofran once every 12 hours, an the Decadron once every 24 hours. with this chemo.

3:00: I finish up this chemo.

IMAG07133:30: I decide now its time to pull out my laptops.  I set them up on the food tray.  The nice thing about the food trays is that they slide two ways.  So I can leave the laptops on the tray, and slide open a second draw for the food, and fold it back to one piece when I am done eating, and not have to move my laptops at all.  I have the left computer for skyping, watching netflix, checking my emails, and messaging with friends and family.  The right laptop is to do work on, connect to client’s computers and fix their issues, program, and just general work, it also plays my streaming music at night when I go to sleep.

4:15: Supper is delivered.  Baked chicken, sorta dry, but its ok.

4:45: I am done with my chicken.

5:00: I am delivered some special mouth wash, same thing I brought from home that my dentist gave me to use when I came into the hospital.  I send the mouth wash home that I brought in and used the mouth wash supplied by the hospital.  I will be brushing my teeth and washing my mouth out 4 times a day to keep my mouth very clean.  As your mouth can become a painful place with mouth sores and other nasty things as a result to what the chem can do to your cells and the inability to fight certain things that we everyday people take for granted.

7:00: My 2nd dose of this chemo is hooked up.

7:30: Nurse shift change.

8:00: Vitals taken by the new nurse.  I have Jason tonight, I had him when I was here in March.

8:45: My chemo finishes up.

9:00: I am just relaxing in bed, watching TV, conversing with my parents and wife.

9:45: All my company leaves me, just me in the hospital room.

IMAG050910:00: Potty time. and we don’t have our own bathrooms, its just a portable pot because the nurse has to inspect everything before they dump it out.  Same thing with the other fun, 2 urinals sitting by the pot.

11:00: All cleaned up, teeth brushed, hands washed and ready to go to bed, but not yet!

11:30: My nurse comes in and starts the Zofran.

11:59: Another day gone!

 

Next Day: https://craig.handsfreehelp.com/stem-cell-transplant-day-7

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Stem Cell Transplant: Day: -9 – Admit and Room Assignment

06/01/2013:

9:30: I wake up and get out of bed.  My dad is cooking banana pancakes.

9:45: I sit by the table and start eating these delicious pancakes

10:20: I take a walk out in the backyard with Buster and check out our garden.  I see a number of tomatoes that are ready to come inside because they are turning red.  I let my dad know.

10:40: I walk out with my wife as she is heading off to work and I’ll be in the hospital before she gets off.  I should have been admitted Friday but due to scheduling and bed assignments at the hospital, that got pushed of the day before to Saturday.

11:00: I throw some things together for my suitcase I am taking to the hospital since I am going to be in the hospital anywhere from 4 weeks to maybe 6 weeks barring no complications…  My Aunt Estella also stops by with some fresh bread pudding that she had baked for me.

11:30: I jump in the shower.

11:45: I jump out the shower.

12:00: I am out the shower, and I finish packing.

12:30: I jump on the computer that I connected to the den’s TV and just doing some final updates and addons.  I mainly set this up so that I can skype with my family from the hospital to the house.

1:10: I get a call from Melissa, the transplant coordinator asking me to show up to the Emergency Room Entrance for 2:00 PM as its a Saturday, and there is no other way to be admitted to the hospital.

1:45: My parents, and I jump in the car and head down to Tulane Hospital.

2:00: We get to the parking garage and use the parking pass we had reactivated on Monday.  I call Melissa and let her know that we just pulled into the parking garage.

2:15: Melissa meets us in the emergency room, as she had to walk over from her office as well.

2:30: Melissa makes a few phone calls and brings us to the back of the emergency room to get us away from the people in the waiting room.

3:00: Financial Services comes and Admits me into the hospital.  Now we just need to wait for a room to be cleaned.  I IMAG0708am taking someone else’s room who is just here for a chemo infusion.  They will move that person to a different bed in a different part of the hospital to free up a bed in the Bone Marrow Transplant Unit which is where I need to be for sterilization and centralization of the nurses that just do these procedures every day.

3:30: Melissa decides it best to take us up closer to the Transplant Unit and get away from the extra bodies that are coming and going through the transplant unit.

IMAG07093:40: We are upstairs. While we are waiting I find some irony in the signs on the door and the area we are in in general.   Does anyone else find a problem with this?  We are on the Pediatrics wing, however that unit also contains the Bone Marrow Transplant Unit which does not allow any children under 14 in that unit.

4:00: I enter my room.  I check it out, pretty nice!  Nice window view, AC nice and big.  Plenty of room around here.  I don’t want to unpack too much because I need to get blood taken and I know that’s not going to be fun, I also need to have a pic line placed for administration of IMAG0707the chemo.  So I am not going to unpack too much now, I’ll save the unpacking for later.

4:30: I put the Lidocane Cream on my chest and put the saran wrap over the cream to keep it from getting on my shirt.

5:30: The nurse comes in and puts in the huber needle into the port.  She can push in just fine, but she can’t pull any blood out.  She tries a few different things, but she can’t get any blood return.  She even uses some cathflow, but I think she may have messed up on the cathflow as she IMAG0710pushed in the cathflow but did’nt clear the air out the syringe so she pushed in a good bit of bubbles at the end.  Then she grabbed a saline syringe and pushed in some saline.  The saline should have never been pushed as it diluted or pushed the cathflow past the problem.

5:45: We go downtairs for a dual view X-Ray so that if something does happen they have a preliminary view of my chest with me coming into the hospital.

6:15: She let it sit for a while, but no blood return when she attempted to pull back.  She then deaccessed the port.  I asked about flushing the port with heprin.  She said she would have to call the doctor about that.  I said well its gotta be flushed with heprin to ensure that it doesn’t clot completely.  She said she was going to leave and call the doctor, when IMAG0711she left I put some more Lidocane cream over my port.

7:30: The nurse comes back in with another needle, a little longer, and she reaccess the port.  She said she accessed it right the first time from what she felt.  She pushed some flush but still she could not pull back any blood.  The only way to get blood is going to be through a stick in my arm.  She first tries for my left inner wrist.  She thought she felt something and after some probing she couldn’t find it.  Then her and my evening nurse came in and both were feeling my arms trying to figure out where to to stick me next.  I told them I can get anesthesia to the room.  They agreed as they didn’t want to guess where they were going to poke me.

8:15: Anesthesia shows up and he introduces himself and said that he worked with my mom and that my mom taught him at Tulane Lakeside.  He starts preparing me and soon after my mom and my wife walk in.  The nurse anesthetist asked my mom if she wanted to try, but she said he could handle it.  He turns on the ultra sound machine and starts searching for my veins.  He finds one and follows it to where it is closer to the skin.  He then numbs up the area, uses a butterfly needle and sticks the needle in.  He doesn’t even get a half a vial and my blood stops flowing.  Ok to plan B, start an IV just to get some blood and then pull it out after collecting the blood.  He finds the vein further up my arm and numbs me up again and starts an IV and gets 2 more vials of blood and then my blood stops flowing.  He says my blood is very thick.  He takes out that IV and moves further up my arm again with the ultra sound machine, finds the vein, numbs up the area and gets the last 2 vials of blood.

9:00 He then pulls out the IV and tapes me up.  He is off to the OR for a case he has to do.  We are waiting on the picline nurse to get the picline started.

10:00: The picline nurse arrives.

10:15: The picline nurse is done setting up her equipment, tapes my arm down to a table with me laying in the bed.  She searches with her ultra sound machine and finds an artery, she searches again and finds a vein.  She numbs up the area and then makes her entry.  She says that the blood vessel walls are thick, and she had to push extra hard just to get through the wall.  She then asks me how tall I am and estimates how much line she needs.  She then starts feeding the picline into my underarm.  This takes about 15-20 minutes.  She finishes up, pulls out the guide line, gets the bleeding to stop, and then puts the patch over the the area.  She leaves and tells me that XRay will come into my room and see if we got it in the right spot.

10:30: XRay comes in, tells me to lean forward in the bed, and he puts the XRay plate behind my back.  He then has me lean back and positions the plate and the XRay machine.  He snaps the XRay, grabs the plate, and goes back down to process it.

11:00 The picline nurse comes back in, there is a problem with the picline.  It is in the SVC but it is point up, when it should be pointing down.  She attempts to flush the line with me sitting up in hoping the flush and gravity will make the picline tip flip down.  She flushes it hard and then XRay comes back up for another image.

11:15: XRay comes back in the room, puts the plate behind ,me, lines it up, snaps it again, grabs the plate and runs back downstairs.

11:45: The picline nurse comes back in again and tells me that the flush and gravity didn’t work that it it is still in the wrong position.  She talked to the doctor and she will attempt to pull out some of the pic line in hopes that it will fall down when she pulls out the picline.

11:50: She starts to set me up.  She puts my arm on a table, gets her sterile wipes and materials and begins to take off the patch from on top of the pic line entry point.

11:59: Another day gone.  Continue on to tomorrow to see what happens next with the picline.

 

Next Day: http://craig.handsfreehelp.com/stem-cell-transplant-day-8-chemo-starts

 

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Chemo Type 3 Cycle 3 + 34

05/30/2013:

9:00: I am up.

9:15: I let Buster out.

9:20: 134 Blood Glucose Measurement.  I let Buster back in.

9:30: I jump in the shower.

9:45: I jump out the shower.  I still find cooler showers are better, for some reason ever since I started getting sick I can’t take really hot showers or I get weak really easily.

10:00: I am heading out to my office.

10:15: I get to my office and go to work.  It is hot in the office today, and has been since Tuesday.  It is reading 75 Degrees F with a humidity of 60%  Too hot and humid to be comfortable, blah.

10:30: I go up to building management, but building management is not in the office, I’ll try again later to see about the heat.

10:45: Back in the heat.  Too hot to sit at my computer, and I have a laptop with a virus infection on it that I have to work on so I go in the room that is less hot, lol.

11:15: Walking back and forth through the office working on different things.

1:30: I catch the building manager in the stairwell, she said she got both of my notes, and even faxed the them to the A/C people as there is no reason why my office should be sitting at 75.  Maybe they will have to add a vent.  Sounds like a lot of work when all they simply have to do is lower the temp for the A/C.  The whole floor is hot, not just my office.

3:30: I am talking to a client across the hall and I bring my thermometer with me just to see the temperature in his room.  81 Degrees, inside, in an office, this is too hot!  Someone messed with the A/C setting.

4:00: Oh this laptop I am working on with the virus keeps blue screening, I finally download a tool and find it has a root kit infection.  I take care of the rootkit, and then limit the startup with msconfig.  I restart the computer and then able to run a tool without it blue screening on me.  Then I begin running my other cleaning tools to check and double check all the files for an infection to make sure this is clean before I give it back to the client.

4:30: I talk to my neighbor in the building when she comes to stop by for a visit.  She asks if I knew anything about why its so hot in here.  I told her that the A/C was set at 70,  and that building management told me that she doesn’t even have a key, it will have to go to the building owner to get the temperature changed now.  So its not just me that’s hot in here.  Sometimes I think its just me being sick and I am hot, but when other people say they are sweating too, I know its just not me and has nothing to do with me being sick, well maybe a little bit, but the temperature has to be lowered.

5:00: I email Melissa and ask her what time tomorrow I need to report in.  She said that do to scheduling, I will have to come in Saturday instead of tomorrow.  So I have one more additional day of freedom before having to go in.

7:00: I am finishing up the last few things with this laptop.

8:30: I am heading home for some Pizza.  I am hungry, haven’t eaten all day, but wasn’t really in the mood to eat with the heat.

9:00: Papa John’s Pizza.  Yummy, good stuff!

10:00: Back in my room on my bed, on my laptop, checking out a few computers and back to some programing the back end of our website.

11:59: Another day gone, wow, still on the bed programming, but quickly getting tired, about to go to sleep!

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Chemo Type 3 Cycle 3 + 32 – Scheduled Admit, But No, Congested

05/28/2013:

08:08: I wake up, let Buster out.

08:25: I jump in the shower.

08:30: I jump out the shower.

08:45: My sister Katie is here to pick me up.

8:50: We find my Lidocane cream and the saran wrap incase they are going to admit me or want to take bloodwork.  I apply that.

9:00: Katie and I head out to pick up my mom from her work.

9:10: We leave my mom’s work and head downtown to Tulane.

9:30: We get to Tulane.

9:37: I sign in.

10:35: We are brought to the back.

11:00: I see Dr. Safah.  She asked me why I am sick.   I tell her that when I last saw her I had a sinus infection, and then I went back to my ENT and he said I had a yeast infection in my mouth and throat from the antibiotics he gave me, because they kill the good stuff too letting the yeast grow, so he gave me stuff to clear that up then Saturday I started coughing really bad and that cleared up for the most part on Sunday.  She said it was probably the sinus infection finally clearing up since no one was sick in the house and I wasn’t running a fever or feeling any pressure in my ears and could hear with no issues. She wants me to get an XRay on my way out just to double check its not pneumonia or anything more serious.

11:25: We head up to Radiology.

11:30: The tech takes me to the back and takes 2 pics of my chest one with me facing the wall, and other from my side with my hands up.

11:40: We are done with the XRays and walk back to Katie’s car.

11:50: We are back at the car and heading out the garage.

11:55: Back on the interstate.

12:10: Picking up a prescription Dr. Jacob called in over the weekend from CVS.

12:30: Picking up some PoBoys from Spitalie’s Deli in Metairie.

12:50: We get home and eat some great Po Boys!

1:30: I help my wife put her license plate on her car.

2:00: I get to my office and it is warmer than normal.  It is 75 Degrees and a 60% humidity,  I sit down and start doing some work on my computer and I am just sweating sitting here.  That’s enough for me, I go up to management who says if it continues to stay hot let her know and she will look into it.  I am not going to sit in a hot office.  I am about to head home and I get an email from a client who is having some printing issues.

2:10: So I head over to my client’s office.

2:30: I get to my clients office and the printing issues is lines printing on the page.  I look at the issue and it is a driver problem.  I change from the PCL6 to a PCL5 and still have issues, I then change out to a PS driver and it prints up with no issues.
3:30: I head back over to my office to pick up a delivery that I was notified, and sit down at my office to check on a few other orders.  Once I start sweating again I stop what I am doing and write a letter to building management about it being too hot.  The temperature is always changing and never a constant comfortable temperature, and being too cold is OK cause I can put an extra shirt on or long sleeves, but being too hot and sweating, I don’t like having to sit in my office shirtless because it is too hot!

7:30: My business partner gets to the office and we talk over a number of things and plans for when I go in and what is going to happen when I am in and our plans to make the business better and stronger for when I get out!

10:30: I have had enough for today and the temperature is now 76.7.  Time for me to head home!

11:00: I get home and eat some chili my mom made yesterday.

11:30: I lay down.

11:59: Watching TV, another day gone!

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Chemo Type 3 Cycle 3 + 25

05/21/2013:

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Chemo Type 3 Cycle 3 + 20

8:00: My cell alarm wakes me up “Run Forrest Run”

8:05: I am up out of Bed, the usual routine, let Buster out.

8:15: In the shower.

8:30: Out the shower.

8:45: On the way to the doctor’s.

9:00: At the doctor’s, oh boy.  I tell him that all my other symptoms have gone away, just my left ear feels like the hearing is impaired with the pressure I feel inside the ear like there is fluid inside.  He has me take a hearing test in the other room, and all the test come out perfectly fine, no hearing loss, he says he sees the ear drum pressure is a little elevated, but that’s probably from the fluid on the inside.  He told me that it should be gone in a few days as long as I keep taking my decongestants and my antibiotics he prescribed on Friday.  He wishes me well and will see me when I get am done with the transplant.

11:00: I am heading out the doctors office, WOW, 2 hours, that was quick!

11:20: I stop by McDonalds for my 2 McDouble special for $2.00.

11:40: I get to the office.  I eat the 2 McDoubles, and they hit the spot.  Now time to do some work.

12:00: I deliver the refurbished computer to the client across the hall.

12:30: I hook up a client’s laptop and start going through that. I am about to upload the backed up data to their server and I get a phone call from them saying that they are having a power outage, and if there was anything special that they had to do.  I told them that they were good to go, that their server would shut down automatically when the battery backup reaches its minimum charge remaining point.

1:00: I start catching up on administrative task and billing.  I haven’t done any administrative work since last week, time to play catchup.

2:00:  Done with the administrative work.  Oh joy.

2:15: I start working on some video format for conversions for a client for the best format for them to save in.

2:30: I see the client’s server has come back online from the power outage, I log in and check things, everything is fine.  I then start the upload of all the data backed up from the laptop before I rebuild the OS.

3:15: I get two text messages from two different clients at the same time.  One is about a message about Windows activation, I log in remotely and quickly take care of that.  The other is about a virus on the machine.  I have cleaned this machine twice, but a certain site they visit keeps infecting them.  I remove a few additional items and turn up some of the settings and restrictions on the computer.

3:45: Done with those two things.  I get a call from the PreTransplant Coordinator.  Melissa tells me that I am scheduled for the transplant hopefully for May 28, 2013.  I will go in and meet with the doctor first and I should be admitted to the hospital right from the doctor’s visit.  So that is the plan.  They want to make sure my sinus infection has completely cleared itself up with no symptoms remaining.  This means I will get to go to my wife’s graduation on Tuesday.  I am just going to pop my head in and pop my head out to see her walk across stage.  I am not sitting in the crowd and risk catching something from someone.  Just in and out for me!

4:30: Back to working on a few things around the office.

6:30: My wife and I head home to meet up with my parents.  We are going out to Nirvana, uptown on Magazine street, for some Indian Food 🙂  Thursday nights is buffet style…

7:30: We get to the restaurant.  Food is great as always!  Nice and spicy 🙂

9:00: We are stuffed, time to head back home.

9:15: We get home.  My wife and I drive back to the office.  I am going to stay and do some more work and she left her car there from earlier.

9:45: Me just sitting here catching up on my blog, and adding some updates 🙂

 

 

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Chemo Type 3 Cycle 3 + 13 – Dr. Appointment – PET Scan #5 Results

12:00: I am having issues sleeping because of my eyes, my cough, and just feeling miserable.

2:00: My wife puts 2 more drops in both eyes.

3:00: I get up and take some cough syrup along with a sleeping pill.

4:00: I finally doze off…

7:30: I wake up, let Buster out and go to the bathroom.  My eye is still shut.  I open my eye and let my wife put in 2 more drops in both eyes.  We are putting drops in the second eye as a preventive measure.  My throat hurts, I grab a chocolate milk from the back fridge.  After downing half of it I realize that I need to take my blood sugar.  I get my things together, but I am out of test strips, so I have to find them, I then realize that I am out of lancets too to poke my finger, I find them and refill, so 15 minutes later and the sugar definitely in my blood stream by now, I take my blood sugar.  It is 175.

8:00: I lay back down and try to grab some more sleep.

9:30: I cannot sleep any longer. I get up.

10:00: My throat is sore, and I am still sorta tired, so I decide to take a warm bath so that I can get some moisturized air into my throat, and relax too at the same time.

10:30: I get a call from a client that has a fake antivirus on their machine.  I remote int and start the removal process remotely.

11:30: I am done the removal process.

11:45: I remote into a server and figure out why a client keeps getting things popping up on their machines every time they launch the program.  I find a setting that someone has changed and disable it, this stops the unnecessary message from popping up every time they launch the application.

12:00: I head on out to pick up my mom.

12:15: I pick up my mom from work, and we head downtown for my Doctor’s appointment to find out the results of my PET scan yesterday.

12:50: We get to the office and sign in.

1:10: We are called to the back.

1:35: We see the Doctor.  She ask about my eye as that is what stands out the most.  Even though it has started to get better, she wants me to see an Eye Doctor and asks a nurse to call the clinic and see if if there is an Eye Doctor available to see me today.  She then starts going through the results.  My neck has completely cleared up, nothing has been found in my neck.  She then sees that the two tumors in my chest have very low activity.  She would like to see no activity, but compared to the PET scan in January, both tumors are in the process of dying and she is ready to move on with the Stem Cell Transplant.  However, she wants to get my eye cleared up first and get my cough and congestion taken care of today too.  I tell her that I have an ENT appointment tomorrow for 9AM, so she is happy to hear that.  Melissa tells me to call her on Tuesday and let her know how I am feeling.  If everything is looking better then that means that I will be looking to start the Stem Cell Transplant next weekend, Saturday, May 18, 2013.  So we shall see. Click Here To Scan Results

2:00: We are heading out of the Doctor’s office and over to the Hospital to visit the clinic to see the Eye Doctor since they can see us now if we go over there now.

2:15: We get to the Eye Doctor and check in.

2:40: They bring us to the back.  The nurse goes through a few quick test and gets an overview of the problem, when it started, etc.  Then she tells us the doctor will be with us shortly.

3:30: The doctor sees us.   She looks at my eyes and can still see some crusting, she sees an infection in the eye, and its probably just the regular pink eye, but to take some Staph infection into account and to make sure it is not that, she adds me to a second eye drop medication.

3:45: We are heading out and I have an appointment on Monday for them to check out my eye and clear my infection for Dr. Safah so that is one less thing for them to worry about.

4:00: My mom and I head out, I am driving home, what? I can see out of both eyes…

4:15: We stop at Rouses and she runs in and gets some Hamburger buns as she already has hamburger meat at home.

4:30: We get home.

5:00: My wife puts two more eye drops into my eyes.  My dad throw the burgers on the pit, and my mom fixes some jambalaya.  I doze off in the chair.

5:30: The burgers and food are ready.  I have to burgers and a very small helping of the jambalaya.

6:30: I am back in the chair on my laptop looking over a few things.

9:00: I scan in the results from the PET scan and edit them.  I also fax them to my Internist.

10:00: I edit the documents.  Another round of eye drops, 2 of the one from last night and 1 of the new.

10:30: I start editing my blog and catching up a few things.

11:00:  I catchup the last chemo post.

11:30: I type up the PET Scan from yesterday.

11:45: I type up today and will post the scan results.

11:59: 2 more eye drops in both eyes of the old, and 1 in both of the new.  Another day gone, Oh joy!

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Chemo Type 3 Cycle 3 + 12 – PET Scan #5

05/08/2013:

8:30: I wake up.

8:45: I jump in the shower.

9:00: I am out the shower.

9:05: My dad and I are in the CRV heading downtown to Tulane Hospital.

9:25: We get to the hospital and park in the Cancer Center.

9:30: We get to admit in the second floor of the hospital and are referred over to Radiology.

9:35: I check in with Radiology, and sit.

9:40: We are taken downstairs to right in front the Emergency Room where an 18 Wheeler Trailer is sitting.  My dad waits in the Emergency Room waiting room, and I go outside and into the trailer.  They are serious in not wanting you to exert yourself, as I am able to walk up a set of stairs, but they only allow me to get into the trailer by using the lift next to the stairs.

9:44: I am sat down and the questions begin on if this is my first PET Scan, when and where was my last one, when was the last time I had a CT scan etc.  They then take my blood sugar and it is 196.  They then work on giving me the radioactive glucose injection.  The tech cannot find a vein in my left or right arm.  He then trys to stick a vein that he thinks he feels in my left hand, but is unable to hit anything.  He then ries the right hand and hits the vein and starts an IV.  He then pushes some saline to make sure that the veins is a good vein, no burning, so I am good to go.  He puts the radioactive glucose into my vein and then pushes the rest of the saline to flush the fluids into my veins out of the iv.  He then pulls out the IV and wraps my hand.  He turns the lights down low and goes into the other room, time for me to wait and let the radioactive glucose circulate my body and uptake into the tumors.

10:45: They come and get me out of the room, position me on the table that slides through the PET Scan machine.  They strap me to the table and put a cover over me.

10:50: They start the test.  I go through the machine once, and then pulled back out and sent to the other side of the machine, and then I go through the machine in 10 inch intervals for a series of pictures to be taken.

11:40: I am done the test, and they lower the table and unstrap me.

11:45: I am heading out the trailer.  My dad sees me and heads out.  We walk the 2 blocks back to the car and take the elevator up to the third floor where we parked.

12:00: We are heading out of the garage.

12:05: We stop for gas.

12:30: We try to stop at Taj Mahal for some Indian Food, but they are packed with no parking.  We decide to try a place closer to the house that also has Indian Food, but they are more of a hole in the wall.

1:00: We arrive at the second Indian Food place, and both have the buffet.  Good food as always.  I enjoy their rice and different curries and other Indian mixtures.

2:00: My dad and I head home.

2:30: My wife and I head to the office to do some work.

3:00: My eye is bugging me, as it has been all day, feeling like something is in it.

5:30: I head home.  I have had enough for today and my eye is aggravating me.

6:00: My mom, being a nurse,  diagnosis my eye as pink eye, and calls my oncologist from EJ, Dr. Veith, and asks if he could order some eye drops, by this time, I can barely open my eye and just feel miserable.

7:00: I am eating some left over Buffalo Chicken Wings, some Blazin, Some Hot BBQ, and some Sweet Hot Wings.

8:00: I get the drops put into my eye.

8:30: I am on my computer, laying in my bed, but only using one eye because my right eye is pretty much swollen shut.

10:00: More eye drops.

11:59: More eye drops, and another day done!  Tomorrow we will get the results of the PET scan.

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Chemo Type 3 Cycle 3 – Infusion Day

04/26/2013:

8:00: I wake up, let Buster out.

8:10: I jump in the shower.

8:20: I jump out the shower.

8:25: Bending over to pick something up, I pop my nail off of its nail bed   again…  I popped it off the nail bed last week and put some Dermabond on it to hold it in place, and I hit it again this morning and popped it back off again..

8:45: I put in the Lidocane cream and cover it up with Saran Wrap.  So after 8  months of fighting with the Saran Wrap and trying to get it started every time I use it again, I discover the top of the Saran Wrap is made to split in half and you pull the Saran Wrap through the cover so that you don’t have to keep restarting the Saran Wrap every time you want to use it.  WOW!  Took me long enough to figure that one out..

8: 55: I head out and over to Tulane.

9:15: I get to Tulane.

9:20: I sign in at the front desk.

9:25: I head on back to the infusion center.

9:30: I am weighed, 258, temp, 98.6, and blood pressure, 145/35.  Oh well that’s what you get for blood pressure when you don’t sit and rest and just come from walking a good bit…

9:40: I am just sitting in my chair waiting for the nurses to start.  I pull out my laptop and start updating my blog…

10:10: The nurse comes around and accesses my port.  She wants to start the chemo, but I tell her that we have to do blood test first.  I was here on Tuesday to see Dr. Safah, but I wasn’t going to have them stick me then and then again today.  I told them one stick is good enough for me.  Stick me for the Chemo, and take the blood work before giving me the chemo.  The nurse checks the orders and sure enough, I am right.  She accesses my port.  I don’t feel a thing.  However it is not cooperating, she can push saline in, but she cannot pull blood out.  It ell her it is positional, she keeps trying to pull blood out.  I tell her to put the patch over the needle to hold the needle in the port and to maintain the sterilization.  I will play with the needle and move around, I have done it before, and I know how to get blood out of my port.  So I move around, and then I sit up and lean forward, and after some more playing, the blood return starts…  She takes the two tubes of blood and then flushes the port.  Now its time to wait again..

11284711:37: I am still waiting for the results of the blood test before they can start the chemo…  Here is a lovely picture of me while I wait…

11:45: They start up the chemo drip….

12:15: The chemo is done being administered.  They start the saline drip to flush the line.

12:30: The saline has timed out.  I am all flushed, just need to wait to be flushed, heprined, and deaccesed

12:35: I am deaccessed all done, ready to go!

12:40: I am done packing up my laptop and getting everything together.

12:45: I check out at the front desk and have my parking validated.

12:50: I get to the car.

12:55: I am out of the parking garage 😛

1:00: Driving to my office.

1:15: At my office.

1:20: I throw some Ramen Noodles, Chilli Flavored in the microwave.  I am going to test out all the Ramen Noodles so that I know which I want during my transplant.

1:25: Ahh the microwave just went off, time to go eat!

2:00: I start back up on some work.

7:00: I am done work for today, time to head home.

8:30: I get home, and grab a bite to eat.

9:00: I am laying in bed, on my laptop, doing some programming, and soon enough ZzZzZzZzZzZzZ…  The chemo has tired me out a little, but not as bad as the others.

11:00: I wake up and work on the laptop some more to finish up a few more lines of code to finish up the thought I had in my head before I fell asleep.

11:30: The laptop is up, and I am just relaxing and watching TV in bed.

11:59: Another day done, another chemo done, time for the weekend…

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Chemo Type 3 Cycle 2 + 15 – Crawfish :)

04/20/2013:

IMAG062210:00: I wake up, time to go outside and start prepping for the crawfish boil.  My dad is off picking up the two sacks of crawfish…

10:30: My dad gets home with the crawfish.  He puts them in the shade and wets them down…

11:00: I start defrosting some shrimp by running multiple small streams of water from a hose over the shrimp we had frozen in the back freezer before they start going bad, they are almost a year old…

11:30: We open the first sack of crawfish and dump them into a large bin and pour salt over them and fill up the bin with water.  This is to purge and wash off the crawfish.  My dad puts his hands in the bin to stir up the crawfish and move the water around.  This also allows any dead crawfish to float to the top for removal.  I am not going to put my hand in that dirty water, because I don’t need to risk infection because they do bite/claws clamp down on your skin, and the mixture of dirty water and an open wound is not the best mix for me.  While he is doing that I position the pot on top of the burn and center it.  I then fill it up to the mark in the pot from past boils.  I then fire up the burner and let the water start heating up.

11:45: My mom gets home with some of the extras she was shopping for, celery, hotdogs, sausage, squid, corn, garlic, onions, mushrooms, lemons, red potatoes, a container of craboil mix, and whatever else we are going to throw in.  We help her unload the car.

IMAG061712:00:  I throw the craboil into the water.  This stuff will get to you if its not windy and you breath the powder in as you pour it…  It gets to you too after the water gets boiling too..

12:10: My dad puts the bottom of the basket inside the bin to hold the crawfish in as he dumps all the dirty water out, and it comes out pretty dirty.  We fill the bin up with water again and once again he stirs them up one more time.  This time the water comes out clear, which is what we want.  We again strain the water using the bottom of the basket.  We then throw all the extras, the celery, hotdogs, sausage, squid, corn, garlic, onions, mushrooms, lemons, red potatoes on the bottom of the basket.  We then dump the bin of crawfish on top of the goodies.  I check on the pot of water, and it’s boiling really nice.  We put a 2×4 through the basket handle and both pick up and move the 39 lbs of crawfish plus the extras to the boiling pot.  The 2×4 helps ups lower the basket into the boiling water and not have to worry about getting burned by the boiling water or accidentally touching the pot when trying to lower basket and being off balanced with that much weight.

12:35:  The water comes back to a boil.  Now we must let the crawfish boil for 15 minutes.

IMAG062012:40: I start defrosting some frozen squid that my mom had brought home.

12:50: It’s been 15 minutes.  I turn off the burner.  My dad wants to try something new he read online.  Our freezer on the back patio that we just hooked up the filtered water line too is full of ice.  We dump all of the ice onto of the crawfish to cool the water off and stop the cooking process.  This also causes the crawfish to sink in the pot to sit in the water and soak up the spices and flavors.

1:00: All the squid is defrosted.  We open up the second sack of crawfish, pour them into the bin and pour the salt over them and fill them up with water to start the purging process for the 38lbs sack of crawfish.

IMAG06211:20: It’s time to take out this load of crawfish.  We pull up the handle, insert the 2×4 under the handle and bring the basket up allowing it to drip a little before moving the basket out into the middle of the grass for a quick final cool down.  We then dump the basket of crawfish into a big ice chest and bring it inside.

1:30: I fire the burner back up on the pot.

1:45: The pot is at a rolling boil again.  I drop the squid and the shrimp into the pot.  Both are inside of their own mesh bags so that we don’t have to fish all of the individual shrimp and squid out of the water.

1:50: My dad strains the crawfish

IMAG06251:55: The water comes to a boil again.  5 minutes for the squid and the shrimp…

2:00: I turn off the burner and let the squid and shrimp soak for 15 minutes.

2:15: I take the shrimp and the squid out and bring them inside.

2:20: I fire up the burner again for the second sack of crawfish, my dad is straining the water out again.

2:25: The water is boiling again.

IMAG06242:45: We throw the extra goodies into the bottom of the basket, and then we throw the crafish on top.  We then insert the 2×4 and bring the crawfish over to the boiling water and lower them in.

3:00: The water is boiling again, 12 minutes of cooking time.

3:15: We turn off the burner, we don’t have any ice this time, so we will just let them soak for 15 minutes.

3:20: I am inside eating some of the crawfish that we cooked earlier, yummy!

3:40: We go back outside and take 2×4 and pick the basket back out the pot and back into the middle of the grass.  These we have to cool off with water from the hose to stop the cooking process and to get them cool enough to dump into the ice chest that way they don’t keep cooking while in the ice chest.

Well I figured since I love crawfish, and I won’t be able to have them for a while going with going through the Stem Cell Transplant, I thought I would overdo a crawfish boil and just make myself not want any for a while by having too much. They tasted great! Also had some shrimp, hotdogs, sasuage, squid, corn, garlic, onions, mushrooms, lemons, red potatoes and many other add ins to the spicy craboil water :) Spicy Horseradish mixed with Ketchup makes a great dipping sauce as well!

IMAG06184:00: We are back inside chowing down.  I am enjoying the nice hot  ones that we  just brought inside.

5:00: I eat many many, I can’t tell you how many pounds I ate, but wow, I am stuffed.

6:00: Time for some dessert.  I eat a little apple pie, but not much at all.

8:00: Onto the computer for some online gaming.  Just some Call of Duty 2 tonight…

11: 59: Still gaming, but another day is gone!

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Chemo Type 3 Cycle 2 – Infusion Day

04/05/2013:

8:20: I am awake.

8:25: I let Buster out.

8:30: I jump in the shower.

8:45: I jump out the shower.

8:50: I put on the Lidocane cream along with the saran wrap on my skin over the port area.

9:00: I am heading out the house.

9:15: I get to Tulane.

9:20: I sign in at the front desk.

9:35: I walk myself back to infusion.

9:45: I get my weight: 261, blood pressure, and temperature taken.

9:50: I pick my chair in the infusion room and setup my laptop.

10:20:  The nurse accesses my port and pulls blood for my blood work.

10:30: Just sitting back here updating my blog…

12:00: The blood results come back and they are ready to start my chemo infusion.

12:15: They hook me up to the chemo and pump it in.

12:45: Chemo is all done pumping in.  The nurse turns on the flush to flush the rest of the chemo out of the line.

1:00 The flush is done.  The nurse starts to deaccess my port, removing the patch over the needle and then pulls the needle out!

1:15: I am walking out, I stop by the front desk and get my parking pass validated.

1:30: I am in the car, heading back to my office.

1:45: I get to my office and start doing some work and catching up on a few different things.

7:00: I am done at work for today, time to head on home and relax.

7:15: I get home, and grab a bite to eat.

7:45: I am laying in bed, on my laptop, watching TV, and just relaxing

8:30: I doze off and take a nap…

11:30: I wake up, that was a good nap…  I go back to doing a few things on the laptop.

11:59: Another day gone!

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Chemo Type 3 Cycle 1 +12

03/27/2013:

9:00: I am up.  I let bust out.

9:15: I check a few things on my computer and respond to a few emails.

10:00: I jump in the shower.

10:15: I jump out the shower.

10:30: My wife came back from her physical therapy and I sit down with her as she eats.

11:00: We head out, she is off to school, I am off to my office.

11:15: I am at the office.  I fix myself some of my tea and a pack of Raemen noodles.

11:30: I respond to a client who asked me how I was doing and if there was anything he could do for me, part of my response is as follows: “I am doing pretty good.  This chemo regimen of rituximab that they currently have me on is only once every third week and it goes after the CD30 markers that the lymphoma cells have that I have attaches itself to the marker and causes the cells death.  This mainly leaves the rest of my bodys cells alone, so the side effects are not as great as the other chemos.  They don’t even give me any antinausea medicine or steroids before giving me the infusion which goes to show how little it messes with the other processes of the body.  So I got 3 cycles of this, so in 7 or 8 weeks I should be ready to have another PET scan which will hopefully show that everything is in remission and then we can jump into the Stem Cell Transplant.  If not in remission they may give me a few more cycles of this chemo first, depending on what they feel is best.”

11:40:  Just here at the office getting back to doing some admin office work and getting the office ready for my absence of 3 to 4 months…

12:30: I get an email from a client who is having issues using Internet Explorer.  After a 2 connection attempts, I figure out it is a trojan on the computer trying to monitor all internet activity.  I delete the trojan horse and any references to it.  Internet Explorer now starts up with no issues.

2:00: Still here, just doing work here and there in the office.

7:00: I head on home…

7:15: I get home.  Spaghetti and Chilli, not a bad combination.

8:00: My dad and I head out to a clients to check on a touch screen monitor that is moving the cursor around on its own.

8:30: We get to the clients location.  There is really nothing we can do for the touch screen as the sensitivity itself what is malfunctioning.  Looks like this almost 5 year old touch screen monitor is at the end of its touch screen life…  I will notify the client tomorrow.

9:00: We are in the car heading back home.

9:20: We get home.  The Lasagna that was cooking in the oven is done and the oven turned itself off.  I take the lasagna out and put in on the kitchen table to finish cooling.

9:45: I cut into the Lasagna, good stuff!

10:30: I just sit in the chair and watch some TV.

11:59: Time to go to bed, another day over, goodnight everybody!

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Chemo Type 3 Cycle 1 + 4

03/19/2013:

8:00: I wake up to Buster crying outside the door because he wants into the room.  I get up, let him outside, and then bring him in the room, and lay down to catch some more sleep.

11:00: I am awake, and I know I am not going back to sleep now.  I get up, let Buster out again, and then sit in the Lazy Boy and watch some TV and check up on emails and do a little bit of work on the laptop.

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Chemo Type 3 Cycle 1 + 3

03/18/2013:  My Wife’s Birthday!  Happy Birthday Dee!

8:00: I wake up, get up out of bed, let buster out, and change and get ready to go to Tulane.

8:10: I take my blood sugar, 135.

8:15: I jump in my Parent’s CRV, since I have to get a new breaktag for my van, and my battery is currently dead from not using my van for at least 4 weeks, and drive to Tulane.

8:23: I hit the traffic around the bend by the pumping station after the I-10/610 split.  I move over one lane so I can hit the Tulane/Airline Exit.

8:30: I get to Tulane, park in the Saratoga garage and take the elevators down to the cancer center.

8:40: I check in, sign some paper work and get my wrist band.

9:00: I am called to the back.

9:10: I am weighed, 253.6, and they also take my vitals and temp, all good there.

9:15: I am shown to my room.  I ask the nurse if they are going to be doing a vaynco trough on me today as well since the home health nurse couldn’t do a vaynco trough on Sunday because Quest Diagnostics is closed on that day.  They said they would make some calls.

9:20: The PA comes in and writes a order for a vaynco trough, so we are good to go, the nurse comes in and takes 3 vials of blood from my already accessed port.

9:30: Now it is just time to sit here and wait for the test results.

10:00: Melissa drops in and gives me a new calendar.  It is updated to show the days that my stem cells were collected and it also shows the 3 cycles of Brentuximab that I am getting, one being this past Friday, the next 3 weeks from that Friday and the last three weeks from that Friday.  It also has 2 appointments that I have to schedule with Dr. Safah the Tuesdays before those Fridays that I get my chemos.

10:15: The nurse comes in to check on me and tells me that I will be getting some Saline and some Magnesium since it appears that I am a little bit dehydrated and my Magnesium levels are running low.

10:30: The PA stops in again and gives me an update that I should stop administering to myself the Vaynco because my trough levels are high and the cultures came back negative, so no need to keep up with the Vaynco.

11:10: The nurse comes back in with the 1000 ml bag of Saline and Magnesium mixed.   She tells me that I will get this over the course of 2 hours at 500 ml per hour.

11:20: The fluids start pumping in to me, so 2 hours of pumping to go…

11:30: I start catching up on my blog.  I start with today and will work my way backwards so that everyone is up to date, since I have people asking me how I am doing and getting worried because I am not updating my blog as often as I used to.  I need to get back into that habbit.  Oh well. On to yesterday’s update!

1:30: The fluids finish up.  The nurse unhooks the tubing and flushes my port and hepranizes it.  Melissa told me to ask the nurse to call her when I was done so that she could go over everything with me about discontinuing the vaynco etc.

2:35: Melissa still hasn’t shown up, I have a few things I have to go do so I tell the nurse just to have Melissa call me.

2:45: I get to the CRV, and head out down Canal St. to get to the Interstate.  I have to go pick up my mom from the Hospital that she works at and bring her home since I am borrowing their car.

3:00: I get to the hospital and my mom is waiting outside, so I pick her up and bring her home.

3:10: We get home, now I gotta run out and pick up my wife from school at Delgado.

3:25: I get to Delgado and pull into the parking lot and call her phone with no answer.

3:35: My wife calls me back she is just getting out of an Midterm Exam that she was taking.

3:40: My wife and I head back home.

4:00: We are home.  Time for my wife to decide what we are all going to do for her birthday, either my mom is going to cook her favorite food, or we can go out to eat.  I haven’t been out to eat in a number of months now…  She decides she wants to go out to eat and enjoy a steak.  I name a few places and she chooses Outback Steak House.  However we wait around for her lawyer to call for a possible rent a car after her accident about 2 and a half weeks ago.

4:30: We all doze off and take a nap.  I am exhausted as well.

6:30: We decide its time to go out to eat.

7:00: We get to Outback.  It’s not too crowded and we are seated almost right away.  I get the full slab of Baby Back Ribs, a free Bloomin’ Onion for the table since their nascar drive finished in the top 10, and a spinach artichoke dip for the table.  The food is great as always.  My wife orders a cheesecake and she gets a birthday scoop of ice-cream both covered in chocolate syrup.  I get a taste of each, both are very good and rich.

8:30: We head on home.

9:00: I text my home health nurse seeing if she needs the port accessed any longer since they said I do not need to do another culture or any more blood work since they are taking me off the vaynco.  She says as long as she doesn’t have to pull any more blood, then I can deaccess it.  She says she will see me later in the week to discharge me.

9:30: I start working on deaccessing the port.  I take off the square adhesive patch that holds the needle in.  I then grab hold of the needle, and with my other hand hold the port down under my skin, and pull the needle out.  At least pulling the needle out does not hurt at all!

10:00: I get things together and get a bath one last time.  Tomorrow I will get a shower!

11:15: Out of the bath and into bed!

11:45: I am out. ZzZzZzZz…

11:59: Another day gone!

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Chemo Type 3 Cycle 1 + 2

03/17/2013:

11:30: I wake up and get out of bed.  As usual, I let Buster out and then prepare myself for the vaynco administration.

11:45: I pull the vaynco medicine ball out of the fridge for it to warm up for an hour.  I sit in the lazy boy and turn on the TV.  I get out my glucose and take my blood sugar, 133. I then take out my laptop and start doing a few things on it, while my ball warms up.

12:30: I hook up my vaynco ball to my port and let it start pumping.

1:00: My dad comes in with a new toy, a battery operated Ryobi blower.  The reason he got this was because of the interchangeability of the batteries.  We have a few other power tools around the house that are battery operated, but each one takes its own battery, and that’s a pain trying to find the right battery and the right charger for the right power tool that you want to use.  From now on all cordless products will be Ryobi so that the battery is the same across all cordless devices.  I unbox it, and put the battery on the charger and just snap the blower to the tubing to refine the direction of the air coming out the blower.

1:30: I unhook the vaynco ball.

1:35: i start taking off the adhesive patch that is holding my needle into my port.

1:45: I pull the access needle out of the port in my chest.  My home health nurse will be coming later today to put a new needle in.

2:00: I see that the battery is done charging for the blower.  I take the battery outside and hook it up to the blower and blow off a little bit of the patio with it.  Works really well!  I then move a plastic chair out on the back grass and watch my dad as he plants some vegetables in the garden.  I make sure that the chair is in the shade after getting some very minor sun burn yesterday.  My skin is a little whiter than what it used to be from being inside all the time with my chemo treatments and staying inside when at home.

4:00: We head back inside.

4:30: My dad throws some steaks on the pit.  I apply the lidocane cream over the port area so that it will be ready when the home health nurse comes over to re-access my port and stab me again with the new needle.

5:30: The steaks are done, supper time.

6:15: I am stuffed.  I call up the home health nurse to find out when she will be coming again to change out the needle.

7:30: The home health nurse calls me back and tells me she will be here in about 30 minutes.

8:00: The home health nurse shows up and first removes the saran wrap and cleans up the lidocane cream that I have rubbed in over the port area.  She then preps with sterile gloves, then flushes the new needle, then cleans the area of my chest where the port is, then takes the needle and access the port.  She then puts the new adhesive patch over the port area.  I am good to go for another 3 days with this needle.

8:20: The nurse finishes up and then she is on her way.

9:00: I hook up my vaynco medicine ball and start my infusion.

10:00: I am done my infusion.

10:15: I get bath.  With the port being accessed I can’t get it wet because the adhesive bandage will start coming off and if it does, then I the whole needle needs to be removed, the area cleaned again and a new needle to re-access the port.

11:15: I get out the bath, and head to bed.

11:30: ZzZzZzZzZ. I am sleeping…  Got to be at the Tulane for 8:30: tomorrow morning.

11:59: Another day done and gone!

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Discharged From The Hospital – Day 8 at Tulane

03/11/2013:

12:00: I am just laying in bed, TV on in the background, playing some BlackJack on my phone.

1:00: Still playing BlackJack but the Ambien and the Vicodin are starting to kick in.  I am half on half off the bed, but very comfortable.

2:00: OK, with all those fluids pumping into me, time to go use the bathroom again.  After using the bathroom, I see that the scale to weigh myself is out in the hallway.  The nurse told me to tell him if I woke up any time early morning and he would take my weight then rather than waking me up at 4.  I don’t see him in site, I step into the hallway, turn on the scale, let it zero, and then get on.  My mom, who is spending the night, waits for the nurse and tells him my weight, meantime, I go lay back down in bed and as soon as I do, I am sleeping from the pills.

6:00: I wake up.  I know I got another hour to sleep, so I doze back off.

7:15: i wake up again, and this time I know breakfast is coming soon.  So I change the channel on the TV and wait.  I take my blood sugars as well and its 113.

7:30: Breakfast arrives.  It is actually semi warm this time!  I don’t care too much for what is in the large compartment which is oatmeal, but in the smaller compartment is a Muffin and in the other is Eggs and Bacon.  So I make me a hospital version of the McMuffin Sandwich.

7:45: I am done with Breakfast.

8:00: Back to playing with the rubric’s cube.

8:30: Dr. Ross greets me and says it looks like I may be going home today.  He get’s a phone call and needs to go talk to the group of doctor’s who oversee the Stem Cell Transfer/Bone Marrow Transfer patients to discuss me and the other patients under their care in the hospital today and for each their plans for the day.

9:30: Dr. John come’s back and says I am going home today and he is going to remove my Quinton/Tunneled Catheter line because I no longer need it since my stem cells have been collected.  Also since they are trying to rule out sources of infection it can go.  He gets a scalpel and cuts the stitches holding it in.  He then prepares me and tells me that he is going to pull it out with no numbing medication.  He then takes a hold of it, tells me to take a deep breath in and then yanks the foot and a half catheter line out of my chest.  This line goes into my chest up into my neck, down into the jugular, and then stops right by the heart for the best blood supply for the blood flow needed to for the Phresis machine to collect the stem cells.

9:45: I ask my nurse for a Vicodin for the pain that is left burning after the pull.

10:00: the nurse comes in and brings a student to watch her de-access my port.  She takes off the patch off over the needle.  She then proceeds to pull the needle out.  I don’t feel a thing, the needle coming out is always better than the needle going in.

10:05: I get up out the bed and grab a glove.  I put the lidocane cream on the port area to numb it up for the next needle stick.

10:15: I jump back in bed and watch TV while I wait for it to numb up.

11:30: The nurse comes back in and wipes of the cream.  She then preps the site and then she asks me what size needle I have, 1 inch or 1/2 inch.  She tries 1/2 inch, but that is too short, I tell her 1 inch will be too much, she goes and finds a 3/4 inch needle.  She preps the site again and puts the 3/4 inch without a problem.  She can push the saline flush into me, and then puts the patch over the needle to hold it in place.  She then test for blood return, and we get that too.  She then flushes the needle with saline and then heparin.

11:40: Dr. John pops back in and we ask him a few questions.  He goes through the whole transplant process with me and prepares me for the long challenging road ahead of me once the transplant process starts.  Too much for me to repeat right now, but definitely something I am not looking forward to.

12:00: Transport shows up and is ready to wheel me to the Saratoga Parking Garage.  I jump in the wheel chair eager to get out of here since I have been here for a whole week.  I take the 2 bags that are in the room and put them in my lap.  Transport then wheels me to the garage.

12:10: We arrive at the garage, my mom goes up a floor and grabs the car and brings it down to the valet parking area for me to get into the car, we head on home!

12:30: We get home. What a relief!

12:45: I am sitting in the lazy boy, just relaxing.  I get out my computers and start checking on everything that I had missed throughout the previous week and start lining up things for this week’s work.  I also turn the TV on in the background.

5:00: Still sitting in the lazy boy, watching TV now more than on the computer.

6:30: Dinner time.  We warm up some Spaghetti and Meatballs and Red Tomato Sauce that Mrs. Cindy, a good friend of ours, made for me last Thursday night, however, no one was planning on me being in the Hospital last Thursday night.  Oh well.  The meatballs are GREAT as always and her sauce over the spaghetti is just right with the cheese added on top!  YUMMY

7:30: I am done eating, and it was great!

8:00: I take out the medicine ball of vancomycin that I will have to start at 9:00.

8:55: I take out the alcohol preps and wipe down the cap of my catheter line.  I then  hook up a saline flush and push half the syringe into me.  I then pull back checking for a blood return which I get after some finagling.  I then push the rest of the syringe into me.  I then take the cap off the ball and test to make sure that the medicine is flowing properly from the ball, and it does with no issues.  I then unhook the syringe and hook the medicine ball line into it, making sure the cap does not come in contact with my skin or anything else during the change for sterility reasons.  I then open the clamp on the ball and let the medicine start flowing into me, back to watching TV…

10:00: The medicine ball is done pumping into me.  I unhook the line and then once again I take another alcohol wipe, and wipe down the cap to make sure it is sterile.  I take the saline syringe and flush the rest of the medicine in the line into me.  I then take the heparin and flush that into the line to make sure that nothing will clot my line.

10:10: Back to watching TV and working on my computer….

11:30: Time to put up for the night.  I am exhausted.

11:45: I am in bed.

11:59: ZzZzZ, sleeping away I am.  Another day over!

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VQ Test – Day 3 At Tulane

03/06/2013:

For all of those checking up on me on here, sorry I haven’t been keeping a recent day by day, play by play update, but I am still around.

4:00: I get awaken by a nurse and someone else wanting me to sign a blood consent and wanting for me to be given blood since my last round of blood test had my platelets at 7.5 and some other low levels.  I ask if I can refuse for now and just wait for morning when the doctor comes in for a complete discussion and explanation.   They agree we can do that and I sign the blood waiver.

7:00: I am awake.  I get my blood glucose tested and need two units of insulin.  So much for that 10 inch meatball calzone and slice of meat lovers pizza I had around 10 last night.  It is in the 260s.

8:00: I see a PA and am told I can eat, so they retrieve my plate that has been sitting for 30 minutes getting cold.  They want me sent downstairs right soon for a VQ in nucleur medicine to see if they can see any evidence of a pulmonary embolism.

10:00: I am finally brought downstairs by transport.

10:10: I start breathing the radioactive material for test.

10:15: I finish breathing the material.  I am put on a table and the radioactive sensor takes 4 different angles of pictures of the radiation being admitted from me.

10:35: The tech then searches my right arm and then my left for a vein.  He then finds something and injects the radioactive material into me.  I don’t feel a thing.  Some of it made my blood stream the other just made my arm as seen on the sensor when he holds my arm up to it.  The tech then takes the 4 images again with the radioactive die in my blood stream as well.

10:55: I am done with the 4 images.  My table is pulled out from the machine and lowered.  Transport is already waiting for me, I sit in the wheelchair, and am transported back to my room.

11:15: I get back to my room.  Lunch is here, so I help myself to the tray, ground meat and cheese pasta, its not too bad.

1:30: I get my first bag/unit of blood hooked up to me and pumped in.

5:30: All done with that bag of blood, the second bag of blood is hooked up and begins pumping.

7:45: My second bag/unit of blood is done pumping.

8:15: Just laying around, watching TV, getting up going to the bathroom, washing my hands, back to watching TV, and I repeat that routine pretty steadily…

11:00:  I get my Ambien and my Vicodin, perfect pills to make you sleep when in a hospital bed!

11:59: I am asleep by now, but yup, another day gone…

 

 

 

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Infection – Fever – Hospitalized – Day 7 – Discharged

02/13/2013:

4:35: I am awaken by labratory.  They are coming into draw a peripheral culture.  She sticks my arm with no problems and takes a half bottle of blood for the culture.  She also pulls some blood for a blood test and trough.

4:50: My nurse comes in and takes 2 syringes of blood.  She first pulls a trash vial to clear out the fluids in the line, most of it blood.  She then pulls out 2 syringes and plunges them into the bottles.

5:05: She is done with the blood draws and head out.

5:10: I am up.  Just time to watch TV.

7:30: They come into pull vitals.  Everything looks good.

8:00: Breakfast arrives, YUMMY!

8:30: Done with breakfast.

10:00: The PA from Dr. Veith’s office comes and visits me and tells me I am being discharged.  She says that home health will be taking care of me, and that IV Solutions will be delivering some medicine that I will be hooking up myself to my port and pumping in.  During this meeting, IV Solutions calls my hospital room phone.  I let the PA talk t to the IV Solutions rep and they hash out the final details.  I then finish up the convo with the IV solutions rep and am told to call them when I get back to the house after being discharged from the hospital.  I then finish up with the PA.

10:15: I have the needle in the port removed.

10:30: I jump in the shower and get a quick shower so that I can be completely clean before going a few more days without being able to get the port wet for sterility reasons.

10:45: I am out of the shower.  I apply some more lidocane cream to my port area and sit in bed.  I am going to have them reaccess the port before I go home that way that is one less thing that I will need to count on home health for and I can give myself, with the help of my mom, a CRNA, the antibiotics.

11:45: Lunch comes.  They tell me to call them right when I am done lunch as she is going to take lunch as well, and then she will access my port.

12:15: I call the nurse, I am all done my Lunch.

12:20: The nurse comes in will the new needle and all the sterile items needed to clean my port area and re-access it.

12:35: My port re access is complete.

12:45: I call transport and sit down and wait for them to come get me.

12:55: While waiting for transport IV Solutions calls me and asks me when I am going to get home.  I tell them I am going to go get some Ashes for Ash Wednesday and then heading home.  She asks me if I have a hook up for Ashes or is it going to take a while.  I tell her I have a hookup.

1:10: Transport shows up.

1:20: I am put into the CRV my dad went down to get.

1:25: We are heading over to my mom’s work, at Tulane-Lakeside Hospital, one of the volunteers there is going to meet us outside and give me ashes.

1:45: We get to the Tulane-Lakeside drive up entrance and my mom and the volunteer comes out, I open the door, and she gives me ashes.

2:00: We get home, and I call the IV Solutions rep back.  She tells me that she will be there in an hour and a half to give me my medications and show me how to use it all.

3:30: The rep shows up.  Shows me how to flush the line and pull back blood, and then flushes the line again.  She then shows me how to check the medicine balls and tells me to run them at 9AM and 9PM.  Clean the port line tip, flush a lil, draw back some blood to make sure there is a blood flow, flush the rest of the saline.  Open the tip on the medicine ball, unpinch the pincher and make sure the antibiotic solutions flows, then pinch it back.  Then unhook the saline syringe and hook up the medicine ball, and unpinch both sides and let the Vancomycin flow into me for and hour, at which tie the ball would be completely deflated.  Once deflated, I should pinch the sides.  Unhook the ball, clean the port line tip again, push a saline syringe in for flushing, and then hook up a heparin syringe and push that into me to prevent any clotting in my line.

4:00: The rep heads on out.

5:00: Back to watching TV.

6:00: I doze off.

8:00: I wake up and eat some food.

9:00: My mom starts the medicine ball process.  Clean the tip, flush saline, pull back blood, flush the rest of the saline, test the ball out, hook the ball up, and then let it pump.

9:07: The ball is pumping into me.

10:10: The ball is done pumping.  My mom takes off the ball lead and cleans the tip, she flushes the line with saline, and then pushes the heparin into me.

10:30: I take an Ambien CR, and watch some TV.  Live Free or Die Hard is on.

11:59: The move is over and I head to bed.  I can feel the Ambien kicking in, not worth fighting it…

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Infection – Fever – Hospitalized – Day 6 – Mardi Gras Day

02/12/2013:

Mardi Gras Day, so much for going out to the parade route to St. Charles Avenue for my normal parade spot.

5:00: I am awake.  I turn on the TV and start watching the Mardi Gras coverage.  Mainly the weather reports for the day, and the people already roaming about on the route and those who have claimed their spots.

6:30: I am still watching the coverage on TV.  Dozing in and out.  Its gloomy outside, easy to sleep more…

7:30: They come in to check vitals.

8:00: I get my breakfast.

8:30: I doze back off.

9:15: My wife is heading to the office to pick up some packages from my suite neighbor who just happens to be working today since Mardi Gras is not her thing.  They move the boxes over to the front desk of Hands Free Help.

9:30: My mom is heading over to the hospital.  She is stopping by Dunkin Doughnuts first.  She is picking up some apple fritters, and some Castle Burgers/Krystal Burgers.

10:15: My wife and my mom both arrive at the same time.

10:30: I dive into some of the Burgers.  I have my whole own dozen to eat.

10:45: My wife heads on out to work taking some Burgers with her.

11:30: I have finished 11 of those Burgers.  I give the last one to my dad to go on top of some of the Burgers he took from the second dozen that they shared.

12:00: Lunch arrives.  I pick at it, as I am pretty full from all those Burgers.

12:45: Done picking at the lunch, and get rid of the tray.

1:15: I lay down and take a nice nap.

3:00: I wake up.

4:00: Just browsing TV, hopefully I get to go home tomorrow!

5:00: My mom heads out.

5:30: Supper arrives.

6:00: I am done with supper.

7:00: I put on a mask and go for a walk up and down the hallway.   However, during the walk the alarm goes off on the pump, I walk back to the nurse station and they just unkink the line and restart the pump.

7:30: I head back to my room.

8:00: My mom comes back and hangs out for a little.

8:30: My wife also shows up and hangs out for a little.

9:30:  My wife and my mom head out, just my dad and I left hanging out.

10: 00: Just TV…

11:30: Still just TV…

11:59: Trying to go to sleep tonight with no sleeping pill help.  I should be going home tomorrow.

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Infection – Fever – Hospitalized – Day 5

02/11/2013:

Lundi Gras!  So much for my Mardi Gras Parades tonight, just here in the hospital.  However I am feeling better.

4:30: I am awaken by my nurse who is her to take blood for some blood work.

5:00: I am back asleep.

7:30: I am awaken by the nurse coming to take vitals, oh boy what fun!

8:00: My breakfast try arrives.  YUMMY!

9:00: Just watching TV and dozing off here and there.

11:30: I am awake, I get more vitals taken.

12:00: Lunch…

12:30: Done lunch, more TV.

1:30: My dad and I start playing some chess online  I am on my computer and he is on my second computer.  We play three rounds, 2 of which I win, and 1 draw/stalemate.

5:00: Dinner is here, yummy.  I can eat more now that I am not feeling sick and also that I am not getting chemo for this stay in the hospital, just antibiotics.

6:00: More TV, reruns, whatever,  also some computer usage.  I am feeling better, as I am using my computer more and more.

9:00: I shave my face and my head with my electric razor I use for my head.  I then use my electric razor for my face for a closer shave and shave my face first and then shave my head as much as I can.

9:30: I am then feeling a little weak from standing up for so long and keeping my hand above my head to shave my head.  I sit in the chair by my bead, and give my dad my hand held electric razor and let him finish up shaving the back of my head where I missed a few places.

10:00: I jump in the shower in the hospital bathroom.

10:30: I jump out the shower.

10:45: The nurse comes in and checks on me.  I hit up an ambien to help me sleep.

11:00: I visit the bathroom to add to my output numbers, yeah they give you no privacy here, they keep track of all your inputs and outputs.

11:15: I am laying in bed resting, and watching TV again.

11:45: Another day gone.  I keep the TV on and let the ambien do its work….

11:59: Day Done… ZzZzZzZzZz

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Infection – Fever – Hospitalized – Day 4

02/10/2013:

4:30: The nurse comes in and takes my vitals.  No blood work for me today.I tell her that it is still warm in the room and I am uncomfortable.  She takes my vitals and then tells me she will go check about getting another room for me.

4:40: The nurse comes back and tells me that I can move to room 513.  I grab my laptop bag, hang it on my iv pole.  I also grab the pump that pumps my legs to prevent blood clots from happening in my legs from spending long periods of time in one position in the bed.  I mainly wear these at night.  My dad grabs everything else in the room, bags, clothes, a truck with a plant in the bed of the truck that my mom purchased from the gift shop and a balloon she purchased as well.  Hey I needed some kind of decorations in my room!

5:00: We are done moving everything.  A bigger room, that’s a relief, not an isolation room.  I flip through the channels on TV and find something to watch.

7:30: Shift change, vitals get checked again, temp still normal.

8:00: Breakfast again, yummy!

8:30: I doze back off again as I am tired, doesn’t take much to tire me out.

10:30: I wake up and watch some more TV.

12:00: Lunch time.

1:00: Back to watching some more TV, not much else to do when stuck in the bed.

3:30: My dad and I play a game of chess.  I win this round.

4:30: The chess set goes in the window as supper is about to come.

5:00: Supper time.

7:30: Shift change. Vitals, still have a normal temp.

8:00: Back to watching TV.  I also get on my laptop and check a few things.

10:30: Still watching TV.

11:45: I turn on my side without the port and start doze off.

11:59: Another day gone, so much fun…

© Craig
CyberChimps