1:30: Wow, that Phenergan that I took last night sure does have a delayed sleeping affect. I haven’t slept this long in a while, and when I say slept, no waking up, tossing or turning or anything, out! Anyways up I am and onto the computer to do some work I am…
2:00: I take my 10:00 & 2:00 Pills 😛 Back to working on things…
4:00: Working on things here and there… Well I am in spot, the computers I am working on are here and there 😉
6:30: Shot time. Not too bad, my wife took my advice and puts the needle in slowly, which hurts less than a fast needle prick. However the Lovenox still burns!
7:00: Supper time, left over BBQ Shrimp, rewarmed in the oven. These shrimp are harder to peel, well mainly the smaller ones are, and those came from somewhere else, never again, stick to the Seafood Outlets for good shrimp.
8:30: Done with the seafood, french bread, and cheese sticks. My dad wants to finish watching burn notice before we take off to go to a client’s location.
9:00: We head over to my office and pick up the keys for the client location.
9:15: We arrive. I find a frozen wireless access point. I reset it to factory default and reprogram everything. I then go look at a wireless printer that is having issues printing. I readd it to the wireless network and then it stuck, so I reboot it and it starts printing everything that was in the printing queue.
10:00: We are heading out, wireless and printing issues resolved.
10:15: We get home. Vitals…
10:30: Bath/shower time. I find a client whos license came in, I remotely apply that license and check that everything updates with the new license, then finish up my shower.
11:55: Out the bathroom I go, in the bedroom I come…
10:00: I am up. I get on my computer and start working on a few things. I get an email from a client that they are having issues receiving emails from certain people. After some research and emailing the two people that supposedly could not send emails, they were having no problems sending emails to her, instead she was getting failure messages when trying to send emails to her. Turns out that the server she was using couldn’t resolve the DNS name redirect that was going on. I pointed the external DNS servers to Google and told Exchange to use those DNS servers. Once this was put in place, there were no issues in sending out emails and the recipients replied immediately that they were getting the emails being sent to them… Issue resolved.
12:00: Onto the next few issues, following up with a few emails from clients.
1:00: Done those small issues. Just updating my blog here and there.
3:00: A computer delivered to my door for me to fix…
4:30: My dad is home, time to start getting ready to throw some BBQ Shrimp in the oven…
5:30: My dad throws the shrimp into the oven.
6:00: Shrimp is ready!
6:05: Another Lovenox shot, blah!
6:15: I sit down at the table. Shrimp is juicy and delicious, just got to peel them all before I eat them, per the doctor’s orders..
5:30: Awaken again for that Lovenox shot. My stomach is black/blue/purple from all the shots 🙁 Vitals and a pill to take with it…
6:00: I am back to sleep…
10:00: I am up to start another day!
10:15: I am on my computer taking care of a few things here and there for clients.
11:59: I finally get back to the computer I was working on last night. Slow as can be.
3:15: I finish up with the computer from last night, it slowly improved with each scan and after removing a number of unneeded programs. He was able to run his Train Simulator program again, so everything is good to go!
3:30: I call up a client who had called me, they are having issues printing to a wireless network printer. After a few attempts to resolve the issue, it is going to be something that I have to go onsite for. I will try to do this tonight, but if not tonight before the end of the week.
3:45: I call up a Legal Case Management Cloud Based Software company looking for a client who wants to transfer from their current in house software to something cheaper since they have do some upgrades and the software company doesn’t want to be reasonable on the cost to upgrade, and wants them to pay for back time when they were not using their support services at all before they can upgrade the software. So forward we search, but looks like this company hasn’t dealt with the software before and not completely sure if they can transfer the data or not.
4:15: So much for talking to them, they will get back to me later in the week with possibilities if possible.
5:00: I go outside and check on the pond since we put the filter in. The water is getting clearer, but the UV clarification will help a lot when we are finally able to put that in.
5:30: My dad starts on cleaning out the kitchen sink drain. Snakes don’t work too well because of the 90 degree angles in the wall feeding the drainage to outside. Finally he uses a wet dry vac on the pipe and it sucks out all kind of junk which was blocking up the sink, now it flows with no issues…
6:00: Another Lovenox shot 🙁
7:00: After washing up, we use the turkey fryer pot to put water in and turn on the burner to heat it up.
7:45: The shrimp that we are boiling go into the water.
8:00: Done cooking, now just soaking.
8:20: The shrimp come out, get dumped into a big bowl, and supper is served!
9:00: I am done eating my share of shrimp. I move to the Lazyboy and watch some TV.
10:00: Bath/Shower time.
11:15: I am out and into bed. A little tired today…
11:30: Vitals.
11:59: Just watching tv, waiting to fall asleep, another day gone!
5:30: I am awaken for vitals and another Lovenox shot, blah..
6:00: I am right back asleep.
8:00: I am awake, normal morning routine, plus adding Lidocane Cream to the port area to deaden it so I don’t feel the needle go in when they access my port in my chest.
8:45: Out the house we head.
9:05: We get to Tulane.
9:10: I check in at the front desk.
10:15: We are called to the back.
10:30: They access my port, but have issues drawing back blood, this is normal, as its positional. I tell them that this is normal, and I just need to move my arm around till we get a blood return for the blood test. However the nurse is too impatient to wait for me to move my arm around to the right spot to draw back the blood, another nurse steps in and just says order we can stick him, I said ha, good luck on that, everytime I am attempted to get stuck, no one can get it, and I have to call down Anesthia to use the ultrasound machine to find my veins to try to stick them then with plenty of Lidocane, no one is sticking me without Lidocane! They then decide that they are going to try to order some cathflo. I don’t even bother explaining again that I am positional and I just have to find the right spot, as they have already made up their mind what they are going to do. I am sent back to the waiting room while they get the approval to order the cathflo.
11:15: The Cathflow approval has come in, I go to the back and get the cathflo put into my port line, I am told to come back in 30 minutes.
11:45: The nurse comes and gets me, as last time it took almost 2 hours for cathflo to work in my picc line. We walk back to the back, she is able to get some blood return, but then it stops. I tell her if I move my arm around enough we’ll get more, she instead pushes the cathflo/blood mixture back into me and also flushes a little to get the blood out of the line, which I am thinking, we just flushed the cathflo out the line as well. They send me back to the waiting room for another 30 minutes.
12:15: I go back to the back and she tries to start pulling blood again, and I start moving my arm around again, this time we find the sweet spot and the blood starts flowing. She fills a trash syringe, and then gets the real syringe. The bloodflow slows down for the real syringe, I move my arm again just right and it really starts flowing and takes no time to fill the syringe. I am then sent back out to the waiting room to wait for the results.
2:00: We get the results, and I don’t need any replacements, so out the needle will come, we go back to a secondary smaller lab for her to simply pull the needle out and put a bandaid on it.
2:10: We are back in the car heading home. My wife’s back starts acting up again, when we are just around the corner from Tulane, so we pull over to a side street and switch positions, I will drive us home, hmm, I haven’t driven a car in 2 months, hope I remember how to do this 😉 LOL
2:15: I am driving us back home…
2:45: We get home. I eat a piece of left over salmon from last night, then in the lazyboy I rest. My wife is resting on the sofa.
4:00: I doze off into a nap…
6:00: I am awaken for my Lovenox shot, blah.
6:30: Shrimp fettuccine for supper. Pretty good 🙂
7:30: Back in the chair I go.
8:30: I get a call from a client. I his compute is running extremely slow. I start a number of scans on the computer remotely. It’s just taking forever to do everything because of how slow the computer is running.
11:45: I am off the phone with the client, we will pick this up tomorrow. I leave a third scan running on his computer overnight.
1:00: I get out the bath, get dressed, brush my teeth, and head to bed.
1:15: My wife takes my vitals, yipee, I am still alive…
2:00: ZzZzZzZzZzZzZzZz
6:15: I am awaken for another set of vitals, but more importantly, my next Lovenox shot is due, blah I hate these shots…
6:30: I am right back asleep.
10:30: I am up…
10:45: I eat a few rice crispy treats for breakfast, and outside I go. I ordered a new pump for the pond, but the thing is I can’t fool with the pond water because my immune system. My dad puts the pump into the pond, and hooks up the hose to the watertfall, and turns it on, then spends a few minutes trying to level the top nozzle for the gusher that aerates the water pretty well, but also roughens up the surface of the water across the pond to keep things moving around and the top of the water from becoming stagnent.
11:45: Yup, it is getting too hot for me to stay outside, and a little weak I feel, so inside I go.
12:15: I warm up some left over crabmeat and pasta that we had last night for lunch.
12:30: I was going to watch Top Gun, but it was on the spanish channel and completely in spanish, yeah that’s no fun… Hairspray comes on TV. My dad loves musicals and hasn’t seen this one, so I leave it on. He catches a number of the underlying jokes throughout the movie.
3:00: I go do a few things on my computer.
5:00: Supper is started to be cooked, tonight we are having blackened Salmon cooked on the BBQ Pit.
5:30: Another shot in the stomach of Lovenox…
6:00: The Salmon is great!
7:00: My wife and I go walking outside. I walk down a block and back. Slowly getting there…
7:30: I have a infusion appointment tomorrow, so bath/shower time after the walk.
12:30: Into bed I go. I take my vitals, and turn on the TV and relax.
1:30: ZzZzZzZzZzZzZzZz
6:00: I am awaken for vitals, and more importantantly my Lovenox shot.
6:30: Back to sleep I go.
11:00: I am awaken to take my 10:00 meds. Pancakes were made early and mine are just rewarmed.
11:30: I just feel tired. I go lay back down in bed with my laptop computer.
12:00: I start reviewing some programming materials.
3:00: My Dad and I head over to my office to pick up some zip ties. I have a few there but not enough, luckily my business partner was there and had a pack in his car.
3:15: We get over to the Restaurant. No one is there, just staff prepping for dinner. As a result of the last lightning strike that took down the POS network because the POS company did not put any surge protectors in with their equipment, but instead just plugged the equipment straight into the wall, the preventive measure is to install surge protectors for the POS Equipment. I go around to all the workstations and put surge protectors in place between the wall and the devices. 2 of them needed surge protectors, the other two already were plugged into one. We then go into the kitchen where they are cooking bacon and biscuits, oh the temptation. I ziptie the surge protectors to the electrical pipes and plug in the printers in the kitchen into the surge protectors. Everything is ready to go for the POS network. I check the toner inventory on the way out and make note of a toner delivery that my wife will make later in the week.
4:00: My dad and I head on out.
4:15: We arrive back home.
4:30: I relax on my bed.
6:00: Shot time, another Lovenox shot…
6:45: Supper time. Crabmeat and pasta, delicious!
7:30: Supper was great!
8:00: I jump on my computer and start some gaming! Wow I my eye hand coordination is way off.
11:30: We are done gaming. Off to get a bath before bed.
2:00: In bed, TV on in the background, just wanting to fall asleep but can’t get comfortable.
5:00: My dad hears me tossing and turning and comes and checks on me, but just an uncomfortable night.
5:20: Hear we go, morning vitals again. Temp 98, Blood Pressure, Glucose 108. My mom injects my Lovenox shot into my left side my stomach. I couldn’t give myself these shots even if I wanted to. The stick hurts, and then the medicine burns…
5:30: I take one of my many medications.
5:40: I grab two rice krispy treats.
5:50: I am back in bed, time to go back to sleep after my daily morning torture.
11:10: I am up and out of bed. I turn on my computer, hit the bathroom, and grab two more rice krispy treats.
11:20: I am on my computer checking email, responding to emails, following up on more things with clients.
12:00: I am hungry and go warm up some left over shrimp lo mein from last night.
12:30: Done the lo mein, now just back to working on the computer.
1:15: Done with working on stuff for now. I log into here and start catching up on all my missing days, just creating post to be filled in later as I catch up.
2:00: Done creating all the missing posts, now updating today. Oops forgot to take my 10AM medicines, I take my 10 and 2 together…
4:00: Just working on a few things from the house, my wife is at the office taking care of a few things there.
5:00: I eat some yellow rice and vegetables my wife cooked, very good!
6:00: I watch ny dad prep everything to fry some catfish. Since Doc said I could have seafood yesterday, I wanted some mild fried catfish. He cuts the fish fillets into 4 and throws them in Louisiana hot sauce to soak. He then puts the fish fry in a pan all while waiting for the oil to heat up. He then transfers the fish, a few pieces at a time, to the fish fry and batters them up. Then into the hot oil they go.
6:45: I am eating the fresh hot fish as he takes them out the oil. Best way to eat them, nice and hot, and the perfect amount of spice as well. Piece after piece I eat.
8:30: I am done eating. Nice and full. Haven’t been this full in a while. Takes a while to fry fish a few pieces at a time at home in a shallow pot with oil. I move to the Lazyboy to watch Unstoppable.
10:00: Off to get a bath to relax. Of course I have my laptop and type up a few business plans and ideas I have had in my head for a while. Things to work on while I am still recovering.
5:30: Waken up for the normal vitals and Lovenox shot, ouch!
5:45: I am a little hungry so I snack on 2 rice krispy treats.
5:55: Back in bed.
10:00: I am out of bed.
10:45: My mom picks me up to head down to the Tulane for my follow up appointment with Dr. Safah.
11:10: I check in at the frontdesk. We just sit in the waiting room.
12:15: We are taken to the back and they get my vitals. 236lbs no temp, and I still have a blood pressure and pulse.
12:20: The nurse asks me the normal questions and goes over my list of medications.
12:40: Dr. Safah comes in and sees me. She says I am looking great. I told her I took myself off of the metformin because my blood sugars were extremely low in the morning. She said that is fine and glad that I was able to stop it. She says I should keep the weight off that I have lost and continue to live a healthier lifestyle. She says the blood clot in my left arm from where the PICC line used to be seems to have gotten worse. Although I feel no pain like I used to when moving around or waking me up in the middle of the night from pain. She has me hold up both of my arms and sees no difference and my blood flow to both hands are the same. Then my mom begins with the questions. She asks if she can feed me meat once a week, and Dr. Safah says no. She does not want the gout to come back and its not time for meat yet. After asking me what I have been eating, I tell her rice crispy treats, cheese pizzas with mushrooms and spinach sometimes, cheese bread, broccoli, anything cooked that is not meat I eat. She asks why I am not eating any seafood, I respond to her that she said last time that I could not have any seafood when the gout first set in. She said that I can have seafood now, just make sure it is clean and well cooked. Deep fried catfish, boiled shrimp, gumbo, etc, I can have any seafood I want, just no meat. I have her check the wording for my medical bracelet, and she has no issues with the wording. I ask her if we should have blood cultures done on my port since my last day of Vancomycin was Tuesday, and she says they can pull them here in the office before I leave. Other than that she says I look good.
1:00: The nurse comes in to access my port. She wipes off the cream and goes to stick me. She sticks me twice, each time, no blood return, but I tell her it burns when she pushes the saline, so it feels like she missed the port all together. She gets a new needle and tries again and this time, no burning, so I am sure she is in. Now I get to flap my arm like a chicken, move it all around to we get to the special spot where blood can be drawn back. We find the spot, and she pulls 2 10ml syringes of blood and then puts the blood from them into the bottles to be watched for the cultures to grow anything.
1:15: We are out of there. I make my next appointment for 2.5 weeks…
1:30: We are pulling out of the parking garage, lol, glad to be going home again.
2:00: Home we are… I order a fried shrimp sandwich from Spitalies. It tastes great!
3:00: Back on my computer at home checking up on a few things…
6:00: Pizza for supper, cheese and spinach… I am having Fried Catfish tomorrow night!
7:00: Just watching TV in the den in the Lazyboy.
11:30: Bath time. I’ll be happy to get a shower again. Research shows that showers also carry more bacteria than baths because they are a smaller area and the air doesn’t circulate as well, causing the area to stay moist longer and become a breeding ground, blah… I don’t have a choice I have to be safe! Oh well more research to be done on the laptop while I relax.
06/22/2013: Stem Cell Transplant Day +12 !!! I Go Home!!!
12:15: The vampire comes and take my blood for the usual blood test.
12:30: I knock out, tomorrow I get to go home, sleep will get tomorrow here faster 😛
6:30: I am awake. Saturday, another round of The Rifleman since I am up early, and its my Dad’s show to watch, not much else on TV anyway this early on a Saturday morning.
6:50: Dr. Miller comes in and checks on me for her report to the doctor. She says I should be discharged later today. YES!!!
7:45: The nurse comes in, vitals and blood sugar check.
8:10: Breakfast. Not too appetizing, as its the same old hospital food. I am happy with my ensure, I can’t wait to get home and eat some real food!
9:30: The doctor comes and visits. She says I look like I am ready to go home. She will put in the discharge paperwork.
10:30: The nurse comes and hooks up the final medicines that I have for here in the hospital. Everything will be switched to pill form and I just need to pick it up from my local Pharmacy.
11:45: The meds are all done dripping. I am unhooked from all my lines. I still have the Picc line in my left arm, but I am free! No more hookups to any machines.
12:30: Lunch arrives, I pick at it, but oh its the same thing I had the past 3 Saturdays…
12:45: The nurse arrives with the discharge papers and goes over all my medications I will be on when I get home. Also anything I should look for and call the doctor or just come into the emergency room if I have any issues with the list of things she gives me. Such as bleeding, fever over 100.4.
1:30: I get up out of bed, put on my mask, and sit in the chair. The nurse is wheeling me out of there. Over to the Saratoga garage we go. My dad pulls the CRV up, and I out of the wheel chair I pop. I slowly walk a few steps and gladly sit down in a vehicle again.
1:40: We are out of there.
2:00: I arrive home. My sisters are home and so is my Bro in Law. How thoughtful, my bro in law got me some balloons, lol, princess balloons, oh well its a good laugh! There is a sign up on the wall Welcome Home Craig. It’s good to be home! I still have my mask on, the only place for now that I will take my mask off is My Bathroom and My Room which is a spare room that only I am using. I eat a few cookies, oh wow are they good! I sit and talk for a little while.
3:00: Time for me to go get a bath! I haven’t had a real bath or shower in 3 weeks. I have had sponge down baths at the hospital while standing up, but that doesn’t count! Sorry, I don’t have any pictures of that either, lol! I can’t get a shower because of my Picc line. I don’t need to get the dressing wet and have that start coming off. Oh the other plus is I get to sit on a Real Toilet too! No more sitting over a bucket to do my business. That was getting old, the plastic was hard and painful, oh I don’t miss that place, nice cushioned toilet seat to sit on now! I take care of business, and then get in the tub. I just soak for 2 hours in the tub, I don’t feel like getting up, the nice warm water is so relaxing…
6:00: I am up and out of the tub. I make it to my room and lay on the bed to relax. I eat a little and then relax in bed, good to be home, in a real soft bed, with at least an 8-12 inch mattress, not the small 3 inch mattresses they have at the hospital that don’t offer any support and just a pain the butt and back!
10:00: I am going to turn in for the night. No vampire tonight, peace and quiet! Goodnight till tomorrow!
12:15: The vampire, I mean nurse comes and takes a few more vials of blood for my daily blood test…
1:00: I finally drift off to sleep.
6:30: I am awake.
6:35: The nurse comes in and checks on me making her rounds.
7:45: Vitals, glucose test, the usual morning routine. The nurse tells me they hear I am going home tomorrow, yup yup!
8:00: Breakfast is served. I eat some of the real food, well its hospital food, if you want to call that real food, and drink my Ensure.
9:00: I am back on my computer working on a few things for work, getting back into somewhat of a routine.
10:00: Doc comes in and checks on me. Everything is set for me to go home tomorrow. The time can’t pass by fast enough!
10:15: Just watching TV and working on the computer.
11:45: Vitals and glucose check.
12:00: Lunch! Some chicken, I pick at it, but end up just drinking my Ensure as it taste so much better at this point.
12:30: Yup you guessed it back to the TV and my computer. Not too much to do when you are stuck in a 15×15 foot room with just a bed a chair and a tv. Time can’t pass by quick enough, I wanna go home!
4:00: Vitals and glucose check.
4:30: Dinner, I pick at what they send, but again its hospital food, and at this point the hospital food, which the same menu is repeated each week, is getting very old. The strawberry Ensure taste great!
10:00: My wife and dad change shifts. My wife has work tomorrow, my dad doesn’t so he will be staying with me tonight and will be bringing me home when they release me tomorrow.
11:59: Another day gone, just waiting for the vampire…
12:05: More blood taken and put into vials for tests.
1:00: Time to sleep…
6:30: I am awake.
6:50: Dr. Miller comes and checks on me for her report.
7:30: Shift change.
7:45: Vitals and glucose check.
8:00: Breakfast, another ensure.
9:00: Just getting back on my computer, actually getting some work done and using my computer. I am actually back in the mood to start doing things and getting some more strength back.
11:00: Doc comes in. He tells me that if I don’t do anything to screw it up, he will be sending me home Saturday, as my numbers are coming up and I am doing well enough to send home. As long as I don’t screw it up by getting hurt, or getting a fever or something while I am in here. I tell him I am ready to go home! I call my mom and sister and update them with the news as well.
11:15: I call my dad and tell him that he has some work to do. I am coming home Saturday. They didn’t expect me to becoming home this weekend, maybe sometime next week, so they do have a number of things to do around the house to prep it and final cleaning.
12:00: Vitals and glucose check…
12:15: Lunch, oh joy, I am tired of this hospital food, Ensure is much better!
12:30: Back to my laptops and checking up on things. Nothing really else exciting today, just work here and there.
4:15: Vitals and glucose check as normal.
4:30: Super, more yummy Ensure.
6:00: I move my laptops away and just relax and watch some TV. My parents are not coming to visit because they have too much to do around the house.
11:59: Still watching TV, waiting for the vampire…
4:00: I am awaken, more vitals, some more medicine hung.
6:30: Oh joy, it’s that time of morning, no matter what, I am awake at this time. Just the combination of the bed, being in the hospital and being awaken every few hours for something.
7:00: Dr. Miller is in to check on me. Another beautiful morning. She takes a listen to my chest as always, looks at my feet for swelling, and says she will be back later with the doctor.
7:30: Shift Change.
8:00: Vitals and Glucose check.
8:15: Breakfast, blah, not appetizing at all. I’ll stick with my Ensure…
9:00: TV, and more laptop access. Starting to check on things with work again…
9:30: My wife is off to her physical therapy appointment, I got this, just a 2 laptops and a computer to keep me busy…
10:00: The doctor comes in and checks on me. Everything is looking good. One day at a time. He says he’ll see me tomorrow.
12:00: Vitals and Glucose check, oh joy!
12:30: Lunch, again Ensure it is. It hurts too much to swallow the real food, and it hurts to swallow the Ensure as well, just not as bad as real food…
1:00: Back to working on my computers. I setup my headset again so that I can start taking phone calls for Hands Free Help again…
4:00: Vitals and Glucose again…
4:30: Can you guess what time it is? Supper time, yup, lol… Ensure again it is, liquid meals…
5:00: Done with the food.
5:30: My wife arrives back from her therapy and checking on the office for me and doing a few things there.
6:30: My parents arrive to visit.
7:30: Shift change!
8:00: Vitals and Glucose, oh joy!
9:00: My parents head on out.
9:30: I am done with the computers for today, I push them aside and just get comfy in bed. I watch some TV and just relax…
12:00: Oh boy more blood test…. They want to keep taking 3 vials of blood daily, and then they want to give you blood, well if they stopped taking my blood they wouldn’t have to give me any back!
12:10: Back to watching TV.
1:00: OK, I am going to turn in for the night. I adjust my bed, my pillows, my wife makes sure I am covered up just right, again, not too much fun moving around with tubes hanging out your arm, one wrong move or yank and that hurts!
1:15: ZzZzZ
6:30: I am up…
7:15: Dr. Miller comes and checks on me for her report to the doctor who will be visiting later today.
7:30: Shift change, oh joy!
8:00: Vitals and Glucose check. Do you see a routine here?
8:15: Breakfast is served. Ensure it is. Everything is still too touch. I hit a the button for a shot of Morphine to help me drink, it hurts to swallow more than anything else…
9:30: The doc makes his rounds. Everything seems normal, my numbers look good, he’ll see me tomorrow…
10:00: TV…
12:00: Vitals and glucose check…
12:15: Lunch, Yup, Ensure it is!
12:30: Done that ensure, back to TV…. I actually go ahead and pull my table with my laptops back to me, and start doing a few things here and there on my laptop again…
4:00: More vitals and another glucose check…
4:20: Dinner is served, ensure it is again for me…
5:00: Done my ensure.
5:30: My parents visit, and my wife goes and takes her break and finds some food.
7:30: Shift change.
8:00: More vitals, Stephanie is back tonight…
8:10: Just more TV and some fooling on the laptop.
8:30: My parents check out, going back home to do some more prep work…
9:00: Just laying in bed, blah blah blah, nothing too entertaining…
12:15: Blood Test… Victor also leaves a cup for the Saturday night urine tests.
3:00: I am up and I gotta go. I fill up the cup, and hit the nurse button when I crawl back in bed so they can come collect it.
4:00: Vitals….
6:00: I am up, my dad is up ust used to not sleeping much when in the hospital. Being awaken every few hours. Bill Cosby on TV Land is the Sunday morning choice of TV, nothing else on anyway…
7:30: Dr. Miller stops by for a basic assessment before the doctor’s come in for their rounds.
7:45: I get my vitals taken after shift change.
8:00: Breakfast is served, sure enough back to the Ensure.
8:30: All done drinking the Ensure, hurts to swallow. Back to just watching TV.
10:00: The doctor comes around asks me how I am feeling, I am doing allright, everything is normal and going as expected. They agree and walk on out.
11:45: Glucose check.
12:00: Lunch, another Ensure.
1:00: Just more TV. Not too much to do when you are limited to a 15ft by 15ft room, and the bed is taking up most of the room, then you have the chair, the portable commode, the bedside nightstand. If you do get up to walk around in this small room, you have the tubes going from you to the pump. I get up when I have to, or use the wonderful commode, but not much other point of getting up…
4:00: Vitals are taken again along with another glucose check, oh joy!
4:30: Another ensure.
5:00: Hmm, what’s on TV tonight, whatever…
6:00: My mom arrives to visit. My dad takes a break and goes and grabs something to eat for himself, since he has been hanging out making sure I didn’t need anything.
7:30: Shift Change, oh joy!
9:00: My mom heads out along with my dad. They have got some things to do around the house, and my dad has work in the morning, so he goes home to get a good night sleep…. Not sure when I am going home yet, but they have to get things ready for when I do go home…
12:15: Blood test and vitals time, oh joy. They take more blood from me and fill up 2 vials. Put the pressure cuff on, put the O2 sensor on, and stick the thermometer in my mouth. Then the nurse leaves me to sleep.
4:00: Vitals again…
4:15: Back to sleep.
6:30: Awakened by Dr. Miller coming to check on me. I am feeling the mucositis kicking in in my mouth. I am starting to talk funny because of it. My whole face is starting to get puffy because of it. My white blood cell count and the ability to fight off any infections is dropping and any bacteria is able to take over, luckily painful mouthsores yet but the pain side of everything is starting up. Dr. Miller says that she will write the order to put me on some Morphine to hide the pain in my mouth and the pain that will be coming soon to follow in my throat, esophagus, and stomach. She listens to me and everything sounds fine, she will be back later with the doc.
7:30: Dr. Miller, the fellow, comes in and checks on me to report back to the doc before their rounds.
7:45: My nurse comes in and checks on me and gets my blood sugar.
8:00: Breakfast is served. I don’t eat any of it instead I am just drinking Ensures instead.
8:30: The nurse comes back in, gives me my meds and insulin.
9:00: Just watching TV. Not in the mood to do too much of anything.
10:00: The doc comes in and checks on me and says everything is going well.
10:30: My morphine comes in and gets hung. I have no reaction to the morphine, no itching, no nothing so that’s a good thing. It’s just to take the edge off the pain in my throat, mouth, and anywhere else I might experience some pain while I am recovering and till my white blood cell count starts coming up.
11:30: Insulin check.
12:00: Lunch is served, Ensure it is again.
12:30: Back to just watching some TV. Not in the mood to be on my computers or do too much of anything else.
4:00: Insulin check.
4:30: Supper is served, but with my mouth and throat the way it is, I don’t feel like eating. I drink an ensure instead.
5:00: Back to watching TV. You can tell I feel bad when I want nothing to do with a computer.
9:00: My dad shows up to spend the night. My wife spent the night the past two nights. My wife has work in the morning so my dad will take over the night shift. They allow someone to stay the night after the transplant when the numbers start dropping and the patient may need some more personal assistance.
12:15: The nurse wakes me up. Time for bloodwork. She takes the bloodwork.
12:30: Its also Wed Night/Thurs Morning. So they are going to change my dressing out for my Picc line. She takes off all the dressing, cleanses the skin.
12:45: All done. The nurse leaves. Time for me to jump on the pot again.
1:05: I get up and just feel dehydrated and now part nauseated. Oh the POT can drain your energy. I jump on the scale on the way back to bed and I weigh 250.0 That 5.8 lbs less than 24 hours ago.
1:15: I hit the call button for the nurse.
1:20: I ask the nurse to empty the pot and also to bring me some Phenengan via IV to knock me out and to take care of the nausea.
1:30: I feel the Phenegan enter my system. Good stuff. All you can do is close your eyes and knock out on this stuff, and no nausea to worry about either after taking some of this.
4:00: The nurse comes in to check my vitals I am basically out of it, just obey the nurses commands to turn so that she can put the blood pressure cuff around my arm, the pulse ox on my finger and some how put the thermometer in my mouth to take my temperature while I am still out of it.
6:00: Dr. Miller does her normal check up on me in the morning.
6:30: I doze back off.
9:00: Dr. Safa comes in and ask how I am doing. I tell her I am doing ok. I am just tired. She says that it is normal to feel tired after the transplant. She said its normal for patients to sleep.
9:10: The doctor leaves and sure enough I don’t fight it, I just lay back and fall asleep again.
11:15: I am awaken for vitals and blood sugar test.
12:00: Lunch is here. I am more tired than hungry. I pick at the food and then simply let sleep win me back over.
3:00: The nurse comes back in and checks on me.
4:00: Supper is served. I am not too interested. Dee shows up 🙂
6:00: My parents show up.
6:15: I am up, half awake, half asleep, talking some. My mouth is stating to fall apart, hard to open my mouth much less put anything inside of it, so drinking is difficult, eating seems almost impossible.
6:45: Sleeping again.
8:00: My parents say they are going to go home and do some cleaning, I am tired I can just sleep, but they gotta work on the room.
11:59: I am still sleeping, my wife makes sure I am all covered up and comfortable and watches me as I sleep as she watches TV.
12:15: I am awaken for a blood draw for my labs. I also am weighed and come in at 255.8.
1:00: My wife leaves as I am also going to crash again sleep and just sleep.
4:00: Vitals.
6:30: Dr. Miller Initial Morning Checkup.
7:00: Glucose Check.
7:45: Breakfast is served. Breakfast I find is hard to to eat because of the what is now going on inside of my mouth. As the blood counts drop and the mouth and throat start getting tender. The real tired and miserable feeling is starting to kick in.
8:30: I am done eating breakfast. Didn’t eat too much. Drank my liquids, but left most of the food.
9:00: I don’t really open my computers. I just watch the TV for the most part. I am starting to feel bad as my blood counts drop and my body starts to succumb to minor bacterial infections etc that it can’t fight. Also all the mouth tissue, throat, and digestive tissue has been destroyed by the Cytoxan and just causing issues everywhere.
9:30: I am back to sleeping….
11:30: Brad checks up on me. Ask me how I am doing. I tell him I am OK, just don’t feel great, just tired and want to lay in bed. A normal side effect.
12:00: Lunch is served. I don’t eat much of that at all, maybe just the bread.
3:00: The wonderful bodily function of bowel movements start up. The nurses warned me of this. The preservative that the stem cells were stored in is now being getting rid of by the body. They said I will go many many times. The worse thing is no matter how much my stomach hurts or how watery it is, they will not give anything to me to make me regular again. They do not want to stop up any patient who is getting rid of the preservatives. So just hold on for the next few days as many hours will be spent visiting the John or POT.
4:30: Oh dinner looks wonderful. Am I going to eat any? No…
5:30: More wonderful times on the POT.
6:15: Back in bed just trying to rest. The POT will exhaust you. Not the smooth warm friend at home, but a hard cold pain.
10:00: Back up for more POT time. Oh this time just being tired, starting to get some dehydration I guess, and starting up with the nausea now.
10:30: Back in bed. Exhausted I am, I just don’t feel good and fell asleep soon after.
12:30: I am out of it. Long day. The stem cells are in, but also are their preservative. Everyone says I smell, but I don’t smell a thing. They are all right. I smell like the preservative that was mixed with the stem cells. The whole room smells of it, I have no clue.
12:45: I am retiring for the night….
4:00: Vitals taken. Back to sleep…
6:00: I am up. I open the windows, turn on the TV and watch some TV.
6:30: Dr. Miller is in to check on me. The stem cell transplant went with no issues. Now time to monitor me.
7:00: Breakfast as normal. Watching some TV and looking at the computers some.
9:00: I doze off while watching TV and using my computers.
11:30: I am waken up for a vitals check and a glucose check.
12:00: Lunch is served. I feel good, just a little tired.
12:30: I am done with lunch.
1:00: I talk to my mom and decide that I want some cheeseburger macaroni for dinner. A weekly repeat of food is the hospitals menu, time for some fresh stuff.
1:30: I doze off again.
3:00: The nurse checks on me, I am allright, just tired. This can be normal after the infusion of stem cells.
4:00: Vitals checks.
7:00: My parents get there, I am just about to start a wash down. They wait for my wash down.
7:30: I am done my wash down. The sheets on the bed are changed for me.
7:45: I am back in bed. Time to eat. My mom scoops some soup cups full of the cheeseburger macaroni that she brought from home.
8:00: I am enjoying cup after cup of the macaroni.
8:30: I have eaten my full. Time to watch TV. It won’t be long now before I doze off as well.
9:15: Sure enough I am ZzZzZzZzZz already.
10:00: I wake up. My parents said they are going to head on out and do a few things around the house. My wife is going to stay a little longer. I watch some more TV, and then off to sleep I go again.
12:15: More labs taken as the normal routine goes.
12:30: Just watching TV.
1:00: Weight 257.6 LBS.
1:30: I start dozing off.
4:00: Vitals.
5:30: Back Off to Zzzzs.
6:30: Dr. Miller checks on me.
7:00: I turn on some TV.
8:00: Breakfast is served.
9:00: They start setting me up for the transplant. Getting my meds together, prepping the layout of the room, getting it coordinated with those who are going to get my stem cells from the liquid nitrogen and defrost them and then give them to me.
10:00: They get everything rolling. They give me some Tylenol. They also give me some Benodryl via IV to prevent any itching with the administration of the stem cells and the preservative that the stem cells have been mixed with.
10:10: The Benodryl is taking its affect. I am feeling out of it…
10:20: They bring in the first bag. I take a few pics of it and the setup. They gravity feed the stem cells back into me. They have 4 – 75cc bags of my stem cells.
10:30: I start to doze off.
10:35. They are done the first empty of bag 1, they fill up the bag a little 4 times with saline and let that gravity feed into me too to make sure that all my stem cells are flushed backed into my system and none are being wasted by being stuck in the bag.
10:50: They are done flushing the first bag. The nurse calls for the second bag of platelets which are in the process of being thawed out.
11:00: I am knocked out. Nothing exciting going on anyway, I’ll just nap!
12:30: I wake up and they are finishing up my last bag. Pretty uneventful, sleeping time.
1:00: I eat lunch as normal. A little groggy still from the Benodryl. I am in the mood for some burgers for supper and send my mom to go get some fresh meat, cook it, and bring me in some fresh non hospital food.
2:00: I fall back asleep.
4:00: I am awake for vitals. Supper is served, but I am going to wait for my burgers.
6:00: My homemade burgers get here brought to me by my mom and dad. Yummy. I eat three burgers.
7:00: Just watching some TV now relaxing. Not much computer work now, just too tired, just wanna watch TV.
10:00: My parents leave.
11:59: Transplant day done. Just relaxing and watching TV.
12:10: Steph comes in and cleans out all my caps on my picc line. She also takes the vials of blood for testing.
1:30: Potty Break 😛
1:45: Just watching Waiting on TV.
2:00: My wife is heading out!
3:00: I turn on Honey I Shrunk The Kids, and fall asleep watching that.
7:00: I wake up really having to go. My nurse Steph has emptied the urinal, and good enough I fill an entire one up.
7:05: I turn the channel on the TV, I don’t want to watch a gospel preacher at 7 in the morning. I turn on The Cosby Show.
7:45: The fellow drops in and checks on me, everything is good.
8:30: Breakfast is served. Western Omelet, Muffin, and Bacon.
9:00: I get up to brush my teeth.
9:05: The fellow and the on call nurse makes their rounds. I am doing great, he is happy to see I am moving around and taking it all great. He said to keep the blogging up!
9:10: I finish brushing my teeth.
9:30: I am back in bed, I put the bed in the chair position, pull my laptops over, and go back to work.
9:45: I am trying to fix a computer that will not boot, but the problem is since it will not boot I cannot remote into the computer.
10:00: My mom shows up, we start talking etc.
11:00: Still troubleshooting that computer, but no luck yet, building virtual machines etc to help me step the user through what they are seeing, but they just don’t h ave the applicable tools to help me fix the issue, and the speed of working on this issue is taking forever because their internet service provider is a Satellite Connection, and that takes forever.
11:45: I get my blood glucose level checked for lunch and vitals.
12:00: I get my lunch and insulin. Baked Dried Chicken, Dried Yellow Rice, Cooked Vegetables, nothing exciting at all. I need some real food!
1:00: My dad arrives.
1:30: I start thinking about what I want to eat tonight for supper. I wants some real food. I can have anything really as long as everything in it is fully cooked, no raw food, no cheeses, no deli cut cheese or meet, nothing that can be cross contaminated. Everything I eat must be done within 2 hours of being cooked. Anything not refrigerated within 2 hours of being cooked must be thrown away. My immune system is falling in its levels of protection.
2:00: My sister arrives, and my mom heads out. My mom is going to grab some fresh meet from the store and make a burger and bring it right back. My sister and my bro in law came in from Prarieville to talk and spend some time with me. Very nice, gave me a different scene. I spent some time talking while I also kept working on my client’s issue.
3:30: My sister and bro in law head on out.
4:30: My mom finally gets back with the fresh food. I eat 3 burgers on wheat buns, with just basic mayo, ketchup, and mustard. They are delicious after all this hospital food. Food, the reason to get out of here and keep on enjoying life! That and my work!
5:15: The nurse comes in and completely unhooks me. She has gotten me towels for me to take another rub down bath.
5:30: I have my mom go wait in the waiting area. Time for a potty break as well, so first I get that out the way. Then I have my dad prepare the water bins for my bath. As there is a glass wall that I cannot go past. Everything is on the other side of this wall, water, necessities, everything. I have to stay on this side of the glass wall because this is considered the sterile and clean air flow side. I need water, ice, food, drink, anything from the outside world I need to call someone or hit the nurse button. If I go to the bathroom and need the urinal emptied or the pot emptied I need to call someone to collect my lovely waste and empty that too. All my intakes are being accounted for as well as all of my outputs. Everything is being monitored to watch for anything that they need to jump on through this process.
5:45: My dad places the two bins of warm water on the window sill. The clean towels on the chair next to the windows. Now I am bathing. Again the process, dip once in the clean pre-surgical scrubwash, and scrub part of my body. Put the rag in dirty pile, dip my clean rag in the rinse water, rinse, put the rag in the dirty pile. Repeat this over and over again. I have my dad help me reach my upper middle back, and then I finish everything else off. I dry myself off really well, and cover myself in a nice helping of power deodorant. I then proceed to get dressed. I have my dad grab the wash bins and rinse them out. He places the rinsed bins back on the ledge. He goes and gets my mom while I start to brush my teeth. Washing my toothbrush with bags of water and spitting into the same bins I just used to bathe with. Never cross contaminating the toothbrush to the water.
6:15: My mom comes back in. Now that I am all clean, time to make the bed. I help her lift the bed up in the air with the controls on the side of the bed, and then she strips the bed and my dad comes in and helps her finish making the bed. May as well have a clean bed if I just got a shower…
6:45: I am just sitting and relaxing.
7:00: My nurse comes in and starts doing some initial vitals and such.
7:40: I get the call from the client wanting to know if we can finish up the computer tonight, or if it is just going to have to be dropped off tomorrow. I tell him let me try a few more things.
8:00: I am back in bed and working on a few options.
8:30: I don’t see any more options and tell him that if he could drop it off tomorrow downstairs that fellow tenants and client in the building is also accepting and handling packages and items for my other clients. My wife will pick it up from them later and hook it up to a special setup that I have that will let me work on the computers as if I was sitting right in front of them even if they can’t boot. My remote software only allows me to remote into a computer once Windows has successfully booted and the computer is online, but I have another device that works as an in between when I can’t do that such as when I am stuck n a hospital.
9:00: My parents are hanging out talking a little longer with me and the nurse.
9:45: My parents decide it is time to head on out.
10:00: Time for me to catch up my blog, and that is what I am doing now.
10:15: Installing my printers remotely so I can fax from my office from my computers anywhere for testing purposes of for purposes where I need a client to type in commands into a computer and it is easier to give them a text format than read lines of commands to type in, just fax the command over to them.
11:00: Just relaxing, getting in and out of bed to pee, and typing my blog…
1:00: Yada takes my blood, one throw away syringe, one to put into the vials. Yada also weighs me, 259.0.
1:30: I completely uninstall a virus monitor software program on a test server and reinstall the program.
2:00: Done reinstalling, I will continue to work on this tomorrow.
2:15: Time for me to doze off. Yada comes in to take care of the beeping IV pump. I ask her to turn off the light by the sink on the way out the door.
2:25: I am out!
4:00: I am awaken by Yada to take my vitals.
4:05: Back to sleep.
6:00: My dad shows up. He came with the lancets for my blood sugar. The lancets my mom uses to take her blood sugar hurt a lot less than than those used by the hospital, ouch! So he brought a number of lancets for me!
6:15: We turn on the Rifleman and watch a few episodes of that.
6:30: Yada comes in and checks my blood glucose, it is 145. I even take it on my meter to double check, 145 is really good compared to what I have been getting.
7:15: The fellow comes in, listens to me breath, and happy that my blood glucose this morning was 145.
7:45: My new nurse Alicia comes in and take my vital signs.
8:00: No food yet? The nurse comes in and tells us that the food people are not allowed in our wing since many of us cannot have dairy and many other particulars that are served on the diet due to being neutropenic. Certain foods can really hurt our bodies or really makes us sick with the state that we are in. She didn’t answer the door quick enough and the food lady took all the food elsewhere with nowhere to be found. So we will have to wait for redelivery.
8:20: The food is redelivered, but now we all have to wait while the nurses warm up all of our breakfast’s in the microwave.
8:30: I get my breakfast. YUCK! I ate the single 3 inch by 3 inch waffle and the 2 3 inch sausage links, I didn’t eat the disgusting oatmeal again.
9:15: The fellow and the doctor on call visits the rooms, everything looks good, he is in and out in 5 minutes.
10:00: I am working on a phone call from a client who is installing some ram that I had purchased for them. They are located in Franklinton, about 90 minutes from New Orleans, and considering the situation, it was easier to have them install the hardware for me. I talk them through it and they will call me back if they have any issues.
11:00: I get up and brush my teeth by the window.
11:15: Done brushing my teeth and cleaning up, I can’t eat anything in 30 minutes anyways because of the mouthwash, but in 30 minutes it will be time to eat again.
11:45: The nurse comes in and takes another blood glucose reading. It is 228. She gets the insulin to hits me up with.
12:15: Lunch is here. Potatoes and meat loaf, not too bad.
1:00: Potty break before my chemo…
1:30: I get a call back from the client with the RAM. They were able to upgrade the ram in the server, but now another computer has an issue.
2:30: The nurse comes in and changes the the saline bag and also gets ready to hang the Mesna.
3:20: Dose 2/2 of the Cyotaxan starts.
3:35: I start feeling the effects of the chemo. my eyes start to get blurry and I have a tickle in my throat.
3:40: The mouth is spicing up, hot!
3:45: Unbearable, nose running, mouth burning, headache starting.
3:55: The nurse comes in and tells me I only have 25 minutes left of the chemo, oh thanks! 25 more minutes of pain?
4:05: Oh… No fun, ouch, ouch, tears dripping down my face, not from crying, just from the pain, my nose is running from the itching feeling, sneezing, etc. My mouth is on fire, the Popsicle I am eating don’t work too well.
4:25: The chemo is done, I hit the call button, the nurse comes and unhooks it, she asks if I am ok, my face is all red, I am just laying in the bed. I tell her I’ll be OK, I just need to get control of this headache. I took the two Tylenol about 15 minutes ago, but no positive relief.
5:00: I am still laying in bed, the headache is just pounding. I ask my dad to close the shades, any light is just hurting my head. He does it and also asks if I want a cool ice rag for my head. I figure it can’t hurt, and I’ll try anything right about now to get my head to stop hurting. It helps a little but not too much.
5:10: I am up, trying to pee the fluids out of me, yes pee, I am convincing myself that peeing and releasing pressure will help me feel better.
5:15: That didn’t work.
5:20: I am walking around the room, it makes my head feel a little better, but doesn’t get rid of it.
5:30: I am back in the bed, oh my head, maybe if I eat something, but I am feeling a little nauseated, I really don’t want to eat.
5:45: The nurse comes back in and asks about my head, I tell her it is still hurting. She leaves to call the doctor to see if there is anything else I can take for my headache.
5:55: I sit up in bed and my dad gets my plate and puts it on my desk tray/computer chair.
6:00: I put the mayo on the chicken sandwich. It is very dry, I ask my dad to mix me my drink. He takes the big cup and mixes 1000ml of water with 2 red drink packets. I use it to wash down the sandwich. I am not interested in the potatoes or the carrots as, I am just not feeling up to eating that.
6:10: I am up and moving around.
6:15: Time for a potty break. More just gas than anything else, but oh… I am just happy my chemo is done and over with.
6:25: I have my dad take some party potty pics, no worries, these are PG 🙂
6:28: My dad and I sit down to watch Dumb and Dumber on Comedy Central.
7:10: Just sitting here updating my blog!
7:30: Dee and my mom show up. My dad and I are still watching TV.
8:30: Dumb and Dumber are over. My mom and dad are going to head out. My dad has been here all day.
9:00: Dee goes and runs to find about to eat around town. While Dee is out, I factory reset her phone and redo everything on her phone. As a result her phone is running faster and also she is able to access more features. Hopefully this time she doesn’t install all the uneeded games and stuff on it this time.
9:45: My dad calls me on skype and I answer and talk back and forth.
10:00: Dee returns and we go through her phone.
11:00: Just killing some time in the room, nothing to do but to kill time to get out of here.
11:59: Another day of time killed….. Catch you tomorrow.
12:15: More blood work, I am still so exhausted. I am feeling pretty out of it from the Thorazine too, I request not to take that again until I need it again. Yeah its great for a no hiccups, but its side effects throw you for a dizzy spell to.
12:30: The nurse leaves, I get out the bed to use the bathroom and am so dizzy. I fill the urinal and stumble back to bed, not fun at all, barely can hold myself up it feels like.
2:00: I wake up again for another pee break. Oh, does it feel like I am heavily on something, oops guess I am being in a hospital and everything.
4:00: I am awaken for vitals. Get up out of bed, on scale, blah, back into bed.
7:15: The fellow comes in and checks on me. I am not feeling as tired as I and I am slowly getting my energy back.
7:30: The nurse takes my blood sugar, it is in the 280s. Not the beset, but not having me in a sleeping state.
8:00: I am loaded up on some insulin.
8:15: Breakfast is served.
8:45: Breakfast is done.
9:00: I brush my teeth out by the window. They don’t want me going past the glass door leasing to outside the room. They tell me the way the air is setup is that everything gets filtered through the filter on the side the room and blown into my room, and then the circulated clean air is circulated out of my room, I can only stay on the window side the room.
10:00: I am just doing some research for a client on some final online backup solutions for a third backup solution for large amounts of storage. Terra bytes and Terra bytes.
11:30: I email off my results.
11:45: Another blood glucose check. 3something.
12:00: More insulin.
12:10: Lunch is served.
12:45: Lunch is done.
1:00: Premeds for my last chemo. 1/2 of Cytoxan.
1:15: The nurse goes and finds another pump to give me my chemo with because I will need 3 pumps.
1:30: The nurse returns with a 3 pump.
2:00: I am looking at a video convertor issue for a client. Freeware is something hard to argue with the makers when they change the software up.
3:00: Time to start the Cytoxan. The nurse hangs the Mesna a bladder rescue drug to keep my bladder and kidney’s flowing. Then she starts the Cytoxan dose. I will get full bag of this in an hour!
3:15: Everything is going good, I am up using the urinal. Fluids are being pumped into me at 250ml per hour, along with the chemo and the mesna.
3:30: My mouth starts feeling funny, a tingling sensation.
3:45: Wow ok, my screen is blurry, I am finding it hard to focus, my nose is itch and congested, my mouth is on fire, my face is hot, I am having a full normal, NORMAL? Yes normal reaction to this drug, holy shit! This is no fun at all.
3:55: The nurse shows me a delivery that I received from the Law Offices of Mark W. Smith, a client of mine. It is a wonderful bouquet of sugar cookies! Yummy, but with my numbers so high, it will be a few days before I can enjoy them. I have never been through this, and have never known anyone else to go through this, so no one knows what I can and cannot have. The nurse says I can probably have one later in the week if my sugars start getting better. My plan is to take the one with the least sugar, eat half on Sunday, eat half on Monday, and have the rest to be taken home and individually wrapped.
4:00: Oh I still feel miserable! Cookies, so tempting, but now I have a headache creeping in.
4:15: I hit the call button for the nurse.
4:35: The nurse shows up I explain my headache, she goes and grabs the tylenol.
5:00: I get my dinner, I pick at it, it’s ok, but the chemo has really thrown me for a loop! The nurse also gives me a Popsicle to see if that will help with my mouth’s burning and weird sensations. My wife arrives, oh what a day.
6:00: I am pretty much done with all the sensations.
6:30: My parents arrive. I go over all the ordeals with them.
8:30: My parents are off again, my mom is going over to East Jefferson General Hospital to visit my aunt, and my dad is going to go home and get some rest.
10:00: The nurse comes in and checks my sugars. 274.
10:15: I get my insulin. I am just watching some TV and talking to my wife.
1030: Dee is going to head on out. I am watching my Terminator movies on the television, so I am pretty much set for the night. Terminator IV followed by Terminator II, I got a few hours to kill and doze off to.
11:00: I am working on some antivirus procedures while also getting up every hour to pee with all the fluids being pumped through me.
It’s Friday…. Don’t know why its so wonderful for me, lol I have been home all day every day, not like I am going to work or anything 😛
